# Awareness

**URL:** https://forum.livingwitherythromelalgia.org/c/bens-friends/awareness/32.md

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## [About the Awareness category](https://forum.livingwitherythromelalgia.org/t/about-the-awareness-category/2641)

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**Author:** [@ModSupport](https://forum.livingwitherythromelalgia.org/u/ModSupport)\
**Replies:** 0

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Raising Awareness of Erythromelalgia. Events, local groups and more

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## [Massachusetts State Awareness Day Video](https://forum.livingwitherythromelalgia.org/t/massachusetts-state-awareness-day-video/3318)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 0\
**Last updated:** [June 4, 2018, 6:23pm UTC](https://forum.livingwitherythromelalgia.org/t/massachusetts-state-awareness-day-video/3318 "2018-06-04T18:23:20Z")

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Hello Everyone ! Here is the video from our state awareness day. Governor Baker declared the month of May to be EM Awareness month! It was a successful day. Enjoy !

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## [Handicap plate for EM?](https://forum.livingwitherythromelalgia.org/t/handicap-plate-for-em/1844)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 4\
**Last updated:** [May 29, 2018, 5:40am UTC](https://forum.livingwitherythromelalgia.org/t/handicap-plate-for-em/1844 "2018-05-29T05:40:11Z")

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Hello everyone ! I had a question. Has anyone ever thought of or been able to get a handicap plate so you can get quickly from your car into a store, etc. during the hot months or for those that live year round in wa…

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## [EM video to share for May awareness](https://forum.livingwitherythromelalgia.org/t/em-video-to-share-for-may-awareness/3277)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 0\
**Last updated:** [May 23, 2018, 4:55pm UTC](https://forum.livingwitherythromelalgia.org/t/em-video-to-share-for-may-awareness/3277 "2018-05-23T16:55:38Z")

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Here is a May awareness video if you would like to share and spread awareness. All the Best, Paula

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## [Speech for state awareness day](https://forum.livingwitherythromelalgia.org/t/speech-for-state-awareness-day/3171)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 2\
**Last updated:** [April 25, 2018, 9:19pm UTC](https://forum.livingwitherythromelalgia.org/t/speech-for-state-awareness-day/3171 "2018-04-25T21:19:19Z")

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Good afternoon my EM family. As you know I have kept all of you in mind while preparing for our state awareness day. We all share the same struggles and our goals are the same. We need awareness, funding, research and a …

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## [Mass Awareness Day State House](https://forum.livingwitherythromelalgia.org/t/mass-awareness-day-state-house/3113)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 2\
**Last updated:** [March 20, 2018, 9:17pm UTC](https://forum.livingwitherythromelalgia.org/t/mass-awareness-day-state-house/3113 "2018-03-20T21:17:05Z")

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Hello Massachusetts Residents: If you haven’t already registered for the state awareness day, you do need to do so asap. I need the EM community to attend. I cannot do this alone. It is VERY IMPORANT that the legislato…

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## [Massachusetts State Awareness Day](https://forum.livingwitherythromelalgia.org/t/massachusetts-state-awareness-day/2996)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 0\
**Last updated:** [February 10, 2018, 9:21pm UTC](https://forum.livingwitherythromelalgia.org/t/massachusetts-state-awareness-day/2996 "2018-02-10T21:21:29Z")

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ATTENTION: Massachusetts residents living with Erythromelalgia, the time has come to register for the first state awareness day “It’s Time to Put the Fire Out” at the Massachusetts State House on May 9, 2018, from 11:00 …

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## [Massachusetts residents awareness day](https://forum.livingwitherythromelalgia.org/t/massachusetts-residents-awareness-day/2915)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 0\
**Last updated:** [January 10, 2018, 8:22pm UTC](https://forum.livingwitherythromelalgia.org/t/massachusetts-residents-awareness-day/2915 "2018-01-10T20:22:55Z")

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Hello everyone ! Any Massachusetts residents here? Our awareness day has been scheduled for Wed. May 9 from 11-12 at the State House in Boston, MA. You are not required to do anything but we do request your presence ! …

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## [High School Football Varsity game awareness day!](https://forum.livingwitherythromelalgia.org/t/high-school-football-varsity-game-awareness-day/2652)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 6\
**Last updated:** [October 6, 2017, 10:24pm UTC](https://forum.livingwitherythromelalgia.org/t/high-school-football-varsity-game-awareness-day/2652 "2017-10-06T22:24:27Z")

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Exciting news !!! My brother Coach Chris Stamoulis and my nephew Kyle Stamoulis who plays on the varsity football team at St. Thomas Aquinas High School has approached the coaches and the football team to have an awarene…

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## [Football team awareness this Saturday!](https://forum.livingwitherythromelalgia.org/t/football-team-awareness-this-saturday/2656)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 2\
**Last updated:** [September 14, 2017, 5:42pm UTC](https://forum.livingwitherythromelalgia.org/t/football-team-awareness-this-saturday/2656 "2017-09-14T17:42:39Z")

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## [Explaining importance of sharing](https://forum.livingwitherythromelalgia.org/t/explaining-importance-of-sharing/2633)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 0\
**Last updated:** [August 24, 2017, 7:54pm UTC](https://forum.livingwitherythromelalgia.org/t/explaining-importance-of-sharing/2633 "2017-08-24T19:54:49Z")

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Hi everyone I have posted a few things for the awareness I am doing for Em and trying to promote funding and research and much needed help for all of us. You may share what you like but when you share just make sure it…

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## [Methuen woman with rare condition seeks to raise awareness](https://forum.livingwitherythromelalgia.org/t/methuen-woman-with-rare-condition-seeks-to-raise-awareness/2631)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 0\
**Last updated:** [August 24, 2017, 7:51pm UTC](https://forum.livingwitherythromelalgia.org/t/methuen-woman-with-rare-condition-seeks-to-raise-awareness/2631 "2017-08-24T19:51:42Z")

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## [My awareness video ! Please like share help](https://forum.livingwitherythromelalgia.org/t/my-awareness-video-please-like-share-help/2586)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 3\
**Last updated:** [August 24, 2017, 7:36pm UTC](https://forum.livingwitherythromelalgia.org/t/my-awareness-video-please-like-share-help/2586 "2017-08-24T19:36:21Z")

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Hi everyone. I’m back. Been busy. Trying to get a campaign going for funding, research and yes a cure !!! Much needed help. Isn’t it time we stop burning? I am putting myself out there. It is causing anxiety but I am…

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## [Massachusetts anyone with EM ? State awareness](https://forum.livingwitherythromelalgia.org/t/massachusetts-anyone-with-em-state-awareness/2526)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 6\
**Last updated:** [August 24, 2017, 7:33pm UTC](https://forum.livingwitherythromelalgia.org/t/massachusetts-anyone-with-em-state-awareness/2526 "2017-08-24T19:33:42Z")

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Hi everyone. I live in Massachusetts and am calling out to all other residents of Massachusetts that have been diagnosed with EM or they think they have EM. If you are in the states, if you could post on any public f…

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## [Massachusetts residents!](https://forum.livingwitherythromelalgia.org/t/massachusetts-residents/2587)

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**Author:** [@rayofhope](https://forum.livingwitherythromelalgia.org/u/rayofhope)\
**Replies:** 2\
**Last updated:** [August 12, 2017, 1:10pm UTC](https://forum.livingwitherythromelalgia.org/t/massachusetts-residents/2587 "2017-08-12T13:10:46Z")

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\[003\] Please share this even if you don’t live in Mass. Funding and research benefits us all.
