# Uncategorized **URL:** https://forum.livingwitherythromelalgia.org/c/uncategorized/1.md [Latest](https://forum.livingwitherythromelalgia.org/latest.md) · [Categories](https://forum.livingwitherythromelalgia.org/categories.md) · [Tags](https://forum.livingwitherythromelalgia.org/tags.md) --- ## [Welcome to Discourse](https://forum.livingwitherythromelalgia.org/t/welcome-to-discourse/8)
**Author:** [@system](https://forum.livingwitherythromelalgia.org/u/system)\ **Replies:** 0\ **Last updated:** [May 30, 2016, 1:04pm UTC](https://forum.livingwitherythromelalgia.org/t/welcome-to-discourse/8 "2016-05-30T13:04:03Z")
The first paragraph of this pinned topic will be visible as a welcome message to all new visitors on your homepage. It's important! Edit this into a brief description of your community: Who is it for? What can they … --- ## [Does anyone else have undetectable fingerprints?](https://forum.livingwitherythromelalgia.org/t/does-anyone-else-have-undetectable-fingerprints/1746)
**Author:** [@Silverlining](https://forum.livingwitherythromelalgia.org/u/Silverlining)\ **Replies:** 2\ **Last updated:** [December 31, 2016, 5:49pm UTC](https://forum.livingwitherythromelalgia.org/t/does-anyone-else-have-undetectable-fingerprints/1746 "2016-12-31T17:49:50Z")
As a former educator, I had to have fingerprinting done for my FBI background check to renew my license. I had to go back several times as my fingerprints were undetectable. Now that I am retired, I went through the fi… --- ## [Our apologies](https://forum.livingwitherythromelalgia.org/t/our-apologies/3542)
**Author:** [@ModSupport](https://forum.livingwitherythromelalgia.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [September 7, 2018, 1:11am UTC](https://forum.livingwitherythromelalgia.org/t/our-apologies/3542 "2018-09-07T01:11:31Z")
Have you had an unwelcome “detour” in your recent navigation around our community? Lately, some people are reporting that they have received “Access denied” messages and been sent on detours to x-rated sites. Don’t worry… --- ## [Apologies](https://forum.livingwitherythromelalgia.org/t/apologies/3541)
**Author:** [@ModSupport](https://forum.livingwitherythromelalgia.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [September 7, 2018, 1:09am UTC](https://forum.livingwitherythromelalgia.org/t/apologies/3541 "2018-09-07T01:09:08Z")
Have you had an unwelcome “detour” in your recent navigation around our community? Lately, some people are reporting that they have received “Access denied” messages and been sent on detours to x-rated sites. Don’t worry… --- ## [A holiday message from all of us at Ben's Friends](https://forum.livingwitherythromelalgia.org/t/a-holiday-message-from-all-of-us-at-bens-friends/2069)
**Author:** [@ModSupport](https://forum.livingwitherythromelalgia.org/u/ModSupport)\ **Replies:** 2\ **Last updated:** [December 26, 2016, 2:42am UTC](https://forum.livingwitherythromelalgia.org/t/a-holiday-message-from-all-of-us-at-bens-friends/2069 "2016-12-26T02:42:57Z")
All of us here at Ben’s Friends would like to wish you and yours a very happy holiday season. We also know that this can be a difficult time of the year, as many of our members are facing tough challenges and perhaps suf… --- ## [Anyone see Dr. Novella at Yale?](https://forum.livingwitherythromelalgia.org/t/anyone-see-dr-novella-at-yale/1774)
**Author:** [@rfordham811](https://forum.livingwitherythromelalgia.org/u/rfordham811)\ **Replies:** 1\ **Last updated:** [December 13, 2016, 3:15pm UTC](https://forum.livingwitherythromelalgia.org/t/anyone-see-dr-novella-at-yale/1774 "2016-12-13T15:15:43Z")
I am requesting a referral from my physician in MA. From this site and internet searching I've learned progression is not clear underlying cause is not clear, unless it is familial drug treatment is hit and miss men… --- ## [What type of doctor diagnosed you?](https://forum.livingwitherythromelalgia.org/t/what-type-of-doctor-diagnosed-you/1834)
**Author:** [@Akkami](https://forum.livingwitherythromelalgia.org/u/Akkami)\ **Replies:** 5\ **Last updated:** [October 20, 2016, 6:54am UTC](https://forum.livingwitherythromelalgia.org/t/what-type-of-doctor-diagnosed-you/1834 "2016-10-20T06:54:18Z")
Hello. Still undiagnosed for the Erythromelalgia. I was wondering what type of Doctor diagnosed everyone. I guess I'll see a bunch of that type until somone finally gets it. Thanks! A --- ## [Finding lidocaine IV Drs](https://forum.livingwitherythromelalgia.org/t/finding-lidocaine-iv-drs/1845)
**Author:** [@Satochan](https://forum.livingwitherythromelalgia.org/u/Satochan)\ **Replies:** 1\ **Last updated:** [August 9, 2016, 8:28am UTC](https://forum.livingwitherythromelalgia.org/t/finding-lidocaine-iv-drs/1845 "2016-08-09T08:28:49Z")
Where can one go to find Drs in THR Dallas area who gives lidocaine infusions? --- ## [Headaches](https://forum.livingwitherythromelalgia.org/t/headaches/1798)
**Author:** [@Karrick](https://forum.livingwitherythromelalgia.org/u/Karrick)\ **Replies:** 3\ **Last updated:** [July 25, 2016, 6:15pm UTC](https://forum.livingwitherythromelalgia.org/t/headaches/1798 "2016-07-25T18:15:27Z")
Hi everyone! I was wondering if anyone suffers with lingering headaches? I get headaches that can last for weeks. I am dealing with one know. It's been going on to week 3. I am miserable. I have an appointment with… --- ## [Does anyone have suggestions to weaning off a fan?](https://forum.livingwitherythromelalgia.org/t/does-anyone-have-suggestions-to-weaning-off-a-fan/1781)
**Author:** [@Miss\_Patti](https://forum.livingwitherythromelalgia.org/u/Miss_Patti)\ **Replies:** 1\ **Last updated:** [July 22, 2016, 7:04pm UTC](https://forum.livingwitherythromelalgia.org/t/does-anyone-have-suggestions-to-weaning-off-a-fan/1781 "2016-07-22T19:04:23Z")
Hi Everyone! Have been using a fan almost 24/7 for about 9 months. My skin is telling me that I've over done it! I know everything in moderation but once I started it I couldn't stop it without terrible burning. But, n… --- ## [Surgery to correct Eyrithromelagia](https://forum.livingwitherythromelalgia.org/t/surgery-to-correct-eyrithromelagia/1789)
**Author:** [@Joni](https://forum.livingwitherythromelalgia.org/u/Joni)\ **Replies:** 0\ **Last updated:** [July 12, 2016, 2:20pm UTC](https://forum.livingwitherythromelalgia.org/t/surgery-to-correct-eyrithromelagia/1789 "2016-07-12T14:20:26Z")
So, back in March I was the 7th person in the USA to have Bi-ladderall Thoracic sympathectomy to end my Eryithromelalgia. Well, it made it worse. $17,000 for the surgery, and my Ery got worse. The surgery was comple… --- ## [Crawling Sensation](https://forum.livingwitherythromelalgia.org/t/crawling-sensation/1776)
**Author:** [@TwinMommy](https://forum.livingwitherythromelalgia.org/u/TwinMommy)\ **Replies:** 4\ **Last updated:** [July 9, 2016, 12:55pm UTC](https://forum.livingwitherythromelalgia.org/t/crawling-sensation/1776 "2016-07-09T12:55:07Z")
Recently I have been feeling like something is crawling across the tops of my feet, or even like a thread is pulled across it, but nothing is there. The sensation is definitely of something crawling ON it, and not under … --- ## [What Would You Do](https://forum.livingwitherythromelalgia.org/t/what-would-you-do/1780)
**Author:** [@TwinMommy](https://forum.livingwitherythromelalgia.org/u/TwinMommy)\ **Replies:** 0\ **Last updated:** [July 7, 2016, 3:48am UTC](https://forum.livingwitherythromelalgia.org/t/what-would-you-do/1780 "2016-07-07T03:48:08Z")
I'm reminded of the 1980’s commercial with the infamous motto, “What would you do for a Klondike bar?” And now I'm curious, I want to know “What would you do for an EM cure?” --- ## [Finding Humor In What Is Just Not Funny](https://forum.livingwitherythromelalgia.org/t/finding-humor-in-what-is-just-not-funny/1778)
**Author:** [@TwinMommy](https://forum.livingwitherythromelalgia.org/u/TwinMommy)\ **Replies:** 1\ **Last updated:** [July 6, 2016, 11:55pm UTC](https://forum.livingwitherythromelalgia.org/t/finding-humor-in-what-is-just-not-funny/1778 "2016-07-06T23:55:11Z")
Even after sleepless nights, I still get up and (barring the minor accommodations I must make to not be in pain), I go about my day with as much normalcy as I can manage, because I want my body to know that my willpower … --- ## [Has anyone experienced EM flares in the mouth and lips?](https://forum.livingwitherythromelalgia.org/t/has-anyone-experienced-em-flares-in-the-mouth-and-lips/1718)
**Author:** [@Robyn3](https://forum.livingwitherythromelalgia.org/u/Robyn3)\ **Replies:** 10\ **Last updated:** [July 6, 2016, 5:47pm UTC](https://forum.livingwitherythromelalgia.org/t/has-anyone-experienced-em-flares-in-the-mouth-and-lips/1718 "2016-07-06T17:47:03Z")
For the last 3 weeks my lips and tongue have been on fire . I went to the dermo and every lab came back normal . She gave me hydrocortisone but is not helping at all. It's soooooo painful ! --- ## [YouTube.com and EM](https://forum.livingwitherythromelalgia.org/t/youtube-com-and-em/1730)
**Author:** [@Robyn3](https://forum.livingwitherythromelalgia.org/u/Robyn3)\ **Replies:** 0\ **Last updated:** [June 14, 2016, 7:20am UTC](https://forum.livingwitherythromelalgia.org/t/youtube-com-and-em/1730 "2016-06-14T07:20:01Z")
Oh my gosh! Who would have thought to find incredible info on YouTube. There are many people's stories that are amazing. The one that documents an 18 year old girl is phenomenal. I have sent it to all my friends, fam…