# A new kind of pain

**URL:** <https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682>\
**Category:** What's New With You?\
**Created:** [September 5, 2021, 6:19pm UTC](https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682 "2021-09-05T18:19:22Z")\
**Posts on this page:** 6\
**Page:** 1

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**Author:** ![connieb](https://avatars.discourse-cdn.com/v4/letter/c/c2a13f/32.png) [@connieb](https://forum.livingwitherythromelalgia.org/u/connieb)\
**Post date:** [September 5, 2021, 6:19pm UTC](https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682/1 "2021-09-05T18:19:22Z")

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I have EM in both feet and am unable to stand/walk. Last night I had a strange symptom that I never had before. I was getting a stabbing intermittent pain every 2 or 3 minutes in my right big toe/bunion area. It was so severe that I cried out every time it hit. In the past I have not had bunion problems. It lasted most of the night. I don’t have the pain today just the “normal” EM pain. I thought it might be gout but I don’t have a high uric acid level and my diet is low in purines. Nor do I have a history of gout. Has anyone else experienced this as part of their EM?  
Thanks,  
Connie

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**Author:** ![kiwi](https://avatars.discourse-cdn.com/v4/letter/k/e5b9ba/32.png) [@kiwi](https://forum.livingwitherythromelalgia.org/u/kiwi)\
**Post date:** [September 7, 2021, 3:23am UTC](https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682/2 "2021-09-07T03:23:22Z")

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Sorry to hear about your sharp pains. I also have experienced some but only for a brief time and not for an extended time. In my case I massaged my feet and probably got up and walked a little. I see you are unable to walk, maybe try massaging around that area.  
I just think it is the nerves giving some sort of warning but maybe not a big deal. I see you have had gabapentum but I found pregabolin ( Lyrica ) better.  
All the best.

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**Author:** ![WoodArtiste](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/woodartiste/32/2413_2.png) [@WoodArtiste](https://forum.livingwitherythromelalgia.org/u/WoodArtiste)\
**Post date:** [September 7, 2021, 10:55am UTC](https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682/3 "2021-09-07T10:55:45Z")

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I have had a similar pain, usually in my toe area. It’s a stabbing pain, rather needle like, and I can’t imagine having it go on all night! I always try to relieve it by putting my weight on it or pressing the area. I can’t reach my feet (have had my hips replaced a few months ago) so I find some way to press against the hurting site.

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**Author:** ![emhelp](https://avatars.discourse-cdn.com/v4/letter/e/e5b9ba/32.png) [@emhelp](https://forum.livingwitherythromelalgia.org/u/emhelp)\
**Post date:** [September 7, 2021, 3:37pm UTC](https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682/4 "2021-09-07T15:37:01Z")

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I too have this when my foot temp is high (left foot only). Extra compounded cream (Amitriptyline Ketamine and Lidocaine) tamps it down.

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**Author:** ![Suzanne](https://avatars.discourse-cdn.com/v4/letter/s/8491ac/32.png) [@Suzanne](https://forum.livingwitherythromelalgia.org/u/Suzanne)\
**Post date:** [September 7, 2021, 8:54pm UTC](https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682/5 "2021-09-07T20:54:59Z")

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I had that intense stabbing and throbbing pain once. I went to the emergency room, and it turned out not to be related to my erythromelalgia. An x-ray showed a broken bone spur, which was caused by osteoarthritis in my big toe joint. This was the first I knew I had arthritis.

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**Author:** ![SparkysMachine](https://avatars.discourse-cdn.com/v4/letter/s/b2d939/32.png) [@SparkysMachine](https://forum.livingwitherythromelalgia.org/u/SparkysMachine)\
**Post date:** [August 4, 2022, 3:05am UTC](https://forum.livingwitherythromelalgia.org/t/a-new-kind-of-pain/5682/6 "2022-08-04T03:05:12Z")

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OMG - I have this! I’ve had EM in both feet for a few years, but this started a few weeks ago – an excruciating, stabbing pain in the base of big toe/ball of my left foot whenever it gets too hot with EM. Especially triggered if I try to cool the foot down at all. It hurts soooo bad for 15-20 minutes, then my foot turns from the usual angry red to blue (!!!) and it gradually fades, leaving that toe tender and too bruised-feeling to walk on. Nothing touches the pain except hydrocodone, it’s that bad. It even made me cry 😭 I’m seeing a new neurologist this week to try to get some help.
