# Are there any EM specialists in San Diego **URL:** \ **Category:** General\ **Created:** [December 28, 2016, 5:08am UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077 "2016-12-28T05:08:35Z")\ **Posts on this page:** 14\ **Page:** 1
**Author:** ![jewels](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/jewels/32/327_2.png) [@jewels](https://forum.livingwitherythromelalgia.org/u/jewels)\ **Post date:** [December 28, 2016, 5:08am UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/1 "2016-12-28T05:08:35Z")
Does anyone know of a of a doctor that specializes or has knowledge of EM in the San Diego area? Thank you!! ---
**Author:** ![ModSupport](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/modsupport/32/1554_2.png) [@ModSupport](https://forum.livingwitherythromelalgia.org/u/ModSupport)\ **Post date:** [December 30, 2016, 8:23pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/2 "2016-12-30T20:23:07Z")
Hey jewels, I did a quick search on our site and came across this discussion. Hope this helps! > [@Can anyone recommend a doctor in northern California?](http://forum.livingwitherythromelalgia.org/t/can-anyone-recommend-a-doctor-in-northern-california/353/11): > > Hi PmRn,[](http://forum.livingwitherythromelalgia.org/forum/topic/listForContributor?user=20uny7wnh92xk) Mads is building a list of doctors around the world, so it would be a good idea to send her a message, she might know a few. There is one San Diego doc I've heard of, the famous Dr Jay Cohen! [http://medicationsense.com/pages/erythromelalgia.php](http://medicationsense.com/pages/erythromelalgia.php) ---
**Author:** ![jewels](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/jewels/32/327_2.png) [@jewels](https://forum.livingwitherythromelalgia.org/u/jewels)\ **Post date:** [December 31, 2016, 12:00am UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/3 "2016-12-31T00:00:18Z")
Thanks so much for your help. Unfortunately, Dr. Cohen died in this past year. I had tried to get in to see him about 3 years ago buy he was not seeing new patients at that time. The search continues! ---
**Author:** ![josh12](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/josh12/32/787_2.png) [@josh12](https://forum.livingwitherythromelalgia.org/u/josh12)\ **Post date:** [January 2, 2017, 8:24am UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/4 "2017-01-02T08:24:58Z")
Look for a rheumatologist they diagnosed me. My dermatologist suspected I had it but wasn’t 100% sure, but I would say rheumatologist would be the better doc to see because EM is an autoimmune disease. ---
**Author:** ![sheltielife](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/sheltielife/32/733_2.png) [@sheltielife](https://forum.livingwitherythromelalgia.org/u/sheltielife)\ **Post date:** [January 2, 2017, 10:32am UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/5 "2017-01-02T10:32:06Z")
It may not be related to rheumatology the cause of EM and it isn’t always an autoimmune disease there are other causes. ---
**Author:** ![josh12](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/josh12/32/787_2.png) [@josh12](https://forum.livingwitherythromelalgia.org/u/josh12)\ **Post date:** [January 2, 2017, 11:26am UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/6 "2017-01-02T11:26:06Z")
True I think a dermatologist could be a good place to start for example I have something scheduled with a different dermatologist for a 2nd opinion. When I went to the Mayo Clinic, my rheumatologist had me first meet with a neurologist and dermatology dept. ---
**Author:** ![Robyn3](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/robyn3/32/953_2.png) [@Robyn3](https://forum.livingwitherythromelalgia.org/u/Robyn3)\ **Post date:** [January 4, 2017, 11:40pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/7 "2017-01-04T23:40:41Z")
My neurologist who diagnosed my EM is in Santa Monica. Her name is Marisa Chang . She is awesome!!! Unfortunately she doesn’t take insurance so it’s $600.00 for initial consultation . She has had luck with radio pulsed frequency on one of her em patients . 80% improvement . It didn’t help me unfortunately! Go see her! She has quite a few EM patients and is willing to research and think out of the box for treatment. Good luck . ---
**Author:** ![Little\_K](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/little_k/32/919_2.png) [@Little\_K](https://forum.livingwitherythromelalgia.org/u/Little_K)\ **Post date:** [January 11, 2017, 4:33pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/8 "2017-01-11T16:33:22Z")
Jewels, I live in San Diego! I would love to meet up. I am seeing a Doctor at Scripps who diagnosed me and he is absolutely WONDERFUL. He has researched a lot about EM since seeing me. He is trouble shooting some things with me and he is using the literature to treat me. He is not an expert- but he is really great about learning and helping me. His name is Doctor Peter Weis at Scripps Clinic in Torrey Pines [https://www.scripps.org/physicians/6794-peter-weis](https://www.scripps.org/physicians/6794-peter-weis) Please let me know if you have any questions! ---
**Author:** ![jewels](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/jewels/32/327_2.png) [@jewels](https://forum.livingwitherythromelalgia.org/u/jewels)\ **Post date:** [January 11, 2017, 10:17pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/9 "2017-01-11T22:17:04Z")
Hello, Thanks for contacting me with the name of your doctor. Is this a private conversation between us? Let me know. Sharon ---
**Author:** ![sheltielife](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/sheltielife/32/733_2.png) [@sheltielife](https://forum.livingwitherythromelalgia.org/u/sheltielife)\ **Post date:** [January 11, 2017, 10:48pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/10 "2017-01-11T22:48:58Z")
In case Little-K doesn’t answer you soon just to tell you it isn’t a private message it’s in a discussion. So if you want it to be private pick send a message and then who you want to message. Sheltielife ---
**Author:** ![jewels](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/jewels/32/327_2.png) [@jewels](https://forum.livingwitherythromelalgia.org/u/jewels)\ **Post date:** [January 12, 2017, 12:09am UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/11 "2017-01-12T00:09:14Z")
Thanks so much for the information. I’d like to talk more with you privately. Thanks. Sharon ---
**Author:** ![jewels](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/jewels/32/327_2.png) [@jewels](https://forum.livingwitherythromelalgia.org/u/jewels)\ **Post date:** [May 1, 2017, 10:05pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/12 "2017-05-01T22:05:28Z")
Hi again, I tried to e-mail you but it came back undelivered. I made an appointment with Dr. Weis. Please contact me. Tks ---
**Author:** ![Little\_K](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/little_k/32/919_2.png) [@Little\_K](https://forum.livingwitherythromelalgia.org/u/Little_K)\ **Post date:** [May 20, 2017, 4:12pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/13 "2017-05-20T16:12:44Z")
Jewels! I am so sorry I have not looked at this in a while! My email is _[email removed by Modsupport for your protection – see below]_ I will be checking this constantly. I am so sorry. Please let me know what happens! _Please do not invite spammers and trolls by publishing your email address. Please send a private message with the information. Click on the person’s avatar, then on the blue “Message” icon, and relay your email address that way._ _Seenie from ModSupport_ ---
**Author:** ![Bottner](https://avatars.discourse-cdn.com/v4/letter/b/f05b48/32.png) [@Bottner](https://forum.livingwitherythromelalgia.org/u/Bottner)\ **Post date:** [May 24, 2017, 6:36pm UTC](https://forum.livingwitherythromelalgia.org/t/are-there-any-em-specialists-in-san-diego/2077/14 "2017-05-24T18:36:18Z")
Dr. Joshua Alexander is a neurologist at Scripps La Jolla San Diego. He has been extremely helpful in managing my EM. I had been seeing Dr. Jay Cohen when he was available as well. We have found a genetic mutation in my sodium channel, originally thought to be causal for EM, but now reclassified as a mediating factor.