# Covid vaccine and EM

**URL:** <https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029>\
**Category:** Symptoms and Treatments\
**Created:** [October 13, 2022, 2:12am UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029 "2022-10-13T02:12:02Z")\
**Posts on this page:** 10\
**Page:** 1

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**Author:** ![cherman](https://avatars.discourse-cdn.com/v4/letter/c/13edae/32.png) [@cherman](https://forum.livingwitherythromelalgia.org/u/cherman)\
**Post date:** [October 13, 2022, 2:12am UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/1 "2022-10-13T02:12:02Z")

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Has anyone with EM been advised not to get Covid of flu vaccines?

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**Author:** ![Miz](https://avatars.discourse-cdn.com/v4/letter/m/e0b2c6/32.png) [@Miz](https://forum.livingwitherythromelalgia.org/u/Miz)\
**Post date:** [October 16, 2022, 3:03pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/2 "2022-10-16T15:03:26Z")

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I have EM and Raynaud’s and wonder why you are asking?  
Is there any indication that it is not a good idea?  
I am scheduled for both flu and covid vaccines next month as I am a carer!  
Have been a bit worried about it as I was not well after them last year.

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**Author:** ![cherman](https://avatars.discourse-cdn.com/v4/letter/c/13edae/32.png) [@cherman](https://forum.livingwitherythromelalgia.org/u/cherman)\
**Post date:** [October 16, 2022, 3:59pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/3 "2022-10-16T15:59:25Z")

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Just read a post somewhere where someone else was asking. Thought I’d ask on our EM site.

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**Author:** ![Miz](https://avatars.discourse-cdn.com/v4/letter/m/e0b2c6/32.png) [@Miz](https://forum.livingwitherythromelalgia.org/u/Miz)\
**Post date:** [October 16, 2022, 4:10pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/4 "2022-10-16T16:10:33Z")

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Ive not heard any advice against, but will make an enquiry with my doctor if I can .  
If I hear anything about it I will get back to you here,

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**Author:** ![Miz](https://avatars.discourse-cdn.com/v4/letter/m/e0b2c6/32.png) [@Miz](https://forum.livingwitherythromelalgia.org/u/Miz)\
**Post date:** [October 16, 2022, 5:57pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/5 "2022-10-16T17:57:58Z")

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I think this might be a good idea to read.

> [@My symptoms are the same as Steve-en (covid?)](https://forum.livingwitherythromelalgia.org/t/my-symptoms-are-the-same-as-steve-en-covid/5583/2):
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> The activation pattern for erythromelalgia is symptoms are elicited by heat and alleviated by cold. If the erythema (redness) you are experiencing follows that pattern, you may have erythromelalgia. An easy test would be to place your feet in front of a heater to see if symptoms occur. Conversely, you could place you feet on ice packs or submerged in ice water to see if symptoms dissipate. COVID-19 infection is known to cause neurological complications. COVID-19 could potentially worsen erythro…

it is in the section on treatment:

I remembered I read this last year and did have the jabs.  
Hope it helps.  
Miz

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**Author:** ![LibbyK](https://avatars.discourse-cdn.com/v4/letter/l/22d042/32.png) [@LibbyK](https://forum.livingwitherythromelalgia.org/u/LibbyK)\
**Post date:** [October 16, 2022, 7:04pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/6 "2022-10-16T19:04:04Z")

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I have primary EM and Raynaud’s. I’ve had 3 vaccinations (all Pfizer in my case) and had zero EM issues with any of them. My thinking is that there is reason to suspect we may be at higher risk than average pop if we catch Covid (considering the vascular infection aspect, clots, and “Covid toes” that look like chilblains many of us have had), and those risks are significantly higher if unvaxxed. I’m getting my bivalent shot in a few days.

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**Author:** ![Miz](https://avatars.discourse-cdn.com/v4/letter/m/e0b2c6/32.png) [@Miz](https://forum.livingwitherythromelalgia.org/u/Miz)\
**Post date:** [October 18, 2022, 9:15am UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/7 "2022-10-18T09:15:24Z")

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I will certainly get vaccinated as the new strain is spreading like wildfire, and I have responsibilities!  
in the meantime I will be very cautious! Still its quite a strain on the body to have both vaccines at the same time !?

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**Author:** ![ModSupport](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/modsupport/32/1554_2.png) [@ModSupport](https://forum.livingwitherythromelalgia.org/u/ModSupport)\
**Post date:** [October 18, 2022, 1:42pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/8 "2022-10-18T13:42:08Z")

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> [@Miz](#):
>
> Still its quite a strain on the body to have both vaccines at the same time !?

I feel like this is a personal decision. I opted to have both vaccines at once, and had no ill effects. My husband still needs to go, and he is opting to have them a week apart, as he’s concerned about side effects. He had a strong reaction to a vaccine and was unwell for a few days last spring, so he’s a bit extra cautious. I’m giving me young adult children the option to do it either way. As a mom I would prefer if they get them done at the same time, just to guarantee that both shots are completed.

Sharon from ModSupport

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**Author:** ![Mona](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/mona/32/584_2.png) [@Mona](https://forum.livingwitherythromelalgia.org/u/Mona)\
**Post date:** [October 18, 2022, 5:51pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/9 "2022-10-18T17:51:57Z")

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Neither my GP nor the specialist who follows my case said anything against it. I’m 71, and, along with my husband, received the Covid shot as well as the initial follow-up booster. Neither of us experienced any complications. neither of us plan to get any further Covid related vaccinations. There’s just too much overall controversy that concerns us.

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**Author:** ![so.cal](https://avatars.discourse-cdn.com/v4/letter/s/a8b319/32.png) [@so.cal](https://forum.livingwitherythromelalgia.org/u/so.cal)\
**Post date:** [January 10, 2023, 12:40pm UTC](https://forum.livingwitherythromelalgia.org/t/covid-vaccine-and-em/6029/10 "2023-01-10T12:40:58Z")

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There’s no controversy. If you follow the science and stay away from political agendas, you’ll realize the vaccine is much safer than getting covid.
