# Diagnosis Day

**URL:** <https://forum.livingwitherythromelalgia.org/t/diagnosis-day/1421>\
**Category:** Blog\
**Created:** [January 30, 2015, 10:22pm UTC](https://forum.livingwitherythromelalgia.org/t/diagnosis-day/1421 "2015-01-30T22:22:59Z")\
**Posts on this page:** 1\
**Page:** 1

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**Author:** ![Willemijn](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/willemijn/32/679_2.png) [@Willemijn](https://forum.livingwitherythromelalgia.org/u/Willemijn)\
**Post date:** [January 30, 2015, 10:22pm UTC](https://forum.livingwitherythromelalgia.org/t/diagnosis-day/1421/1 "2015-01-30T22:22:59Z")

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Dear LWE-friends, 

You've been on my mind even though I wasn't able to write here for a while.

Much happened since the last time I was here: 

I researched my own diseases. Struggled to get to the right doctor/tests. I have ME, and became active in patiënt-advocacy. I 've been caring for my father who became seriously ill and went to hospital. He is at home now, although fragile.

Today, finally, after 11,5 years… DIAGNOSIS DAY!

- no Polyneuropathy

- no Small Fiber Neuropathy

- yes Erythromelalgia best possible explanation for hand problems

- underlying Lupus unlikely

- Raynauds Phenomena possible

I will share more details about my journey to this 'D-Day' later. Big hug,

Willemijn