# Erythromelalgia — A Life Of Fire And Pain

**URL:** <https://forum.livingwitherythromelalgia.org/t/erythromelalgia-a-life-of-fire-and-pain/812>\
**Category:** Articles and Research\
**Created:** [July 18, 2014, 12:11am UTC](https://forum.livingwitherythromelalgia.org/t/erythromelalgia-a-life-of-fire-and-pain/812 "2014-07-18T00:11:24Z")\
**Posts on this page:** 4\
**Page:** 1

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**Author:** ![jimm](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/jimm/32/580_2.png) [@jimm](https://forum.livingwitherythromelalgia.org/u/jimm)\
**Post date:** [July 18, 2014, 12:11am UTC](https://forum.livingwitherythromelalgia.org/t/erythromelalgia-a-life-of-fire-and-pain/812/1 "2014-07-18T00:11:24Z")

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[http://www.lensaunders.com/wp/erythromelalgia-a-life-of-fire-and-pain/](http://www.lensaunders.com/wp/erythromelalgia-a-life-of-fire-and-pain/)

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**Author:** ![Madere\_dancermom](https://avatars.discourse-cdn.com/v4/letter/m/a5b964/32.png) [@Madere\_dancermom](https://forum.livingwitherythromelalgia.org/u/Madere_dancermom)\
**Post date:** [July 18, 2014, 12:14am UTC](https://forum.livingwitherythromelalgia.org/t/erythromelalgia-a-life-of-fire-and-pain/812/2 "2014-07-18T00:14:36Z")

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Thanks for sharing this, jimm. So, has anyone tried the Qutenza patch? Months of relief sounds wonderful.

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**Author:** ![Alina\_D](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/alina_d/32/281_2.png) [@Alina\_D](https://forum.livingwitherythromelalgia.org/u/Alina_D)\
**Post date:** [July 18, 2014, 1:37pm UTC](https://forum.livingwitherythromelalgia.org/t/erythromelalgia-a-life-of-fire-and-pain/812/3 "2014-07-18T13:37:57Z")

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I haven't tried the patches. It may not work as well for me because I have it over most of my body and would think I would need too many patches. It sounds a little scary to me too. Caspian?? Don't get me wrong I know it helps some and encourage those who's doctors think it may be of help to them to give it a go. It just makes me nervous because Caspian burns.

I have tried just in the last couple of weeks the lidocaine infusions and started Mexelitine. The infusion gave me quick and significant relief but it only lasted a few days. I need a few months to slowly build up the Mexietine in my body for it to start helping but I have high hopes because of my good response to lidocaine.

Thank you Jimm for sharing this with us.

Take care,

Alina

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**Author:** ![jimm](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/jimm/32/580_2.png) [@jimm](https://forum.livingwitherythromelalgia.org/u/jimm)\
**Post date:** [July 18, 2014, 6:26pm UTC](https://forum.livingwitherythromelalgia.org/t/erythromelalgia-a-life-of-fire-and-pain/812/4 "2014-07-18T18:26:47Z")

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before I knew what I had I tried Caspian cream on my feet thinking I had neuropathy. I went on a bike ride with my seakers on and all hell broke loose 20 minutes into the rid, it burned like fire, 10 times worse than a bad flare-up. Anything Caspian in Cream form applied directly on the effected area is a big NO NO!