# Feet/ hands are only comfortable when cold

**URL:** <https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266>\
**Category:** Symptoms and Treatments\
**Created:** [February 16, 2016, 6:31am UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266 "2016-02-16T06:31:39Z")\
**Posts on this page:** 12\
**Page:** 1

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**Author:** ![Angie1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/angie1/32/901_2.png) [@Angie1](https://forum.livingwitherythromelalgia.org/u/Angie1)\
**Post date:** [February 16, 2016, 6:31am UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/1 "2016-02-16T06:31:39Z")

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It's freezing here in Ohio and I love it because my feet aren't burning.. too much.. is it ok to keep your feet cold like this? I am new to all of this.

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**Author:** ![Beth\_L](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/beth_l/32/840_2.png) [@Beth\_L](https://forum.livingwitherythromelalgia.org/u/Beth_L)\
**Post date:** [February 16, 2016, 6:43am UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/2 "2016-02-16T06:43:55Z")

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Hi Angie, As long as you don’t cause the skin to deteriorate by soaking your feet in cold water too much, you should be okay. I try to avoid going out in warm/hot weather now, and not soak my feet at all. I spend much time indoors with my feet elevated in bed. I keep the house cold, too, about 66 degrees. Since I’ve done this, my flares & burning have subsided. The Lyrica and Cymbalta I am on are helping with my symptoms too. I’m new to this as well. I developed EM last summer. I live in Missouri. I dread the coming of summer and the 100 degree heat we can get here.  
Beth

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**Author:** ![Angie1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/angie1/32/901_2.png) [@Angie1](https://forum.livingwitherythromelalgia.org/u/Angie1)\
**Post date:** [February 16, 2016, 10:27am UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/3 "2016-02-16T10:27:58Z")

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And I love being outdoors. This is a shame for all of us.

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**Author:** ![Beth\_L](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/beth_l/32/840_2.png) [@Beth\_L](https://forum.livingwitherythromelalgia.org/u/Beth_L)\
**Post date:** [February 16, 2016, 12:13pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/4 "2016-02-16T12:13:37Z")

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Angie said:

> And I love being outdoors. This is a shame for all of us.

Me too. Gardening is my passion. Now I have to do what I can before May, & after that, my poor husband will have do all the watering of the beds for me. Kansas City is hell on earth in the summer....

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**Author:** ![Angie1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/angie1/32/901_2.png) [@Angie1](https://forum.livingwitherythromelalgia.org/u/Angie1)\
**Post date:** [February 16, 2016, 4:10pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/5 "2016-02-16T16:10:08Z")

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My friend lives there, yes I hear! Im in mansfield ohio.  
As cold as it was I was up all night with burning if both hands and feet.  
My heart is palpitating a lot also. Im going to have to look into other sx of EM

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**Author:** ![Angie1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/angie1/32/901_2.png) [@Angie1](https://forum.livingwitherythromelalgia.org/u/Angie1)\
**Post date:** [February 18, 2016, 3:55pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/6 "2016-02-18T15:55:22Z")

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Also, is it common to have nerve pain alongside the hot red burning?  
I was freezing trying to cool my feet down lastnight and lately ive noticed that I get chills on one side of my body and not the other at times. Very weird

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**Author:** ![TwinMommy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/twinmommy/32/954_2.png) [@TwinMommy](https://forum.livingwitherythromelalgia.org/u/TwinMommy)\
**Post date:** [May 15, 2016, 10:27pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/7 "2016-05-15T22:27:24Z")

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I try to keep my feet as cold as possible all the time

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**Author:** ![TwinMommy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/twinmommy/32/954_2.png) [@TwinMommy](https://forum.livingwitherythromelalgia.org/u/TwinMommy)\
**Post date:** [July 6, 2016, 6:35am UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/8 "2016-07-06T06:35:52Z")

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I do exactly the same thing

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**Author:** ![Noelia](https://avatars.discourse-cdn.com/v4/letter/n/49beb7/32.png) [@Noelia](https://forum.livingwitherythromelalgia.org/u/Noelia)\
**Post date:** [November 7, 2016, 6:19pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/9 "2016-11-07T18:19:12Z")

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My feet and hands are also confortable when really cold. As the matter of fact before developing EM i´ve always had really cold hands and feet, more cold than the average person and they felt perfectly fine and confortable.

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**Author:** ![AppleB](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/appleb/32/879_2.png) [@AppleB](https://forum.livingwitherythromelalgia.org/u/AppleB)\
**Post date:** [February 7, 2017, 8:11pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/10 "2017-02-07T20:11:19Z")

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I have also had very cold hands and feet growing up and before developing EM. During that time i experienced no pain or discomfort, they were just ice cold to the touch and had variant colors from red, blue, purple and grey

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**Author:** ![Noelia](https://avatars.discourse-cdn.com/v4/letter/n/49beb7/32.png) [@Noelia](https://forum.livingwitherythromelalgia.org/u/Noelia)\
**Post date:** [February 20, 2017, 6:41pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/11 "2017-02-20T18:41:11Z")

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my hands had always had like a yellowish color, now they are pinkish even when not flaring. I´ve been having a hard time with the soles of my feet this days ☹

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**Author:** ![kimr](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/kimr/32/1938_2.png) [@kimr](https://forum.livingwitherythromelalgia.org/u/kimr)\
**Post date:** [February 25, 2017, 2:58pm UTC](https://forum.livingwitherythromelalgia.org/t/feet-hands-are-only-comfortable-when-cold/1266/12 "2017-02-25T14:58:36Z")

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I’m the most comfortable when not only my hands and feet are cold, but I’m feeling slightly cold all over. A big change for me because before EM when I was cold all over or my hands and feet were cold I was very uncomfortable. Now the feeling of being cold is welcome. I have come to not only love winter outdoors, but to love having ‘winter’ indoors as well.
