# Living with EM for 5 years

**URL:** <https://forum.livingwitherythromelalgia.org/t/living-with-em-for-5-years/2205>\
**Category:** New Member Introductions\
**Created:** [February 25, 2017, 9:30pm UTC](https://forum.livingwitherythromelalgia.org/t/living-with-em-for-5-years/2205 "2017-02-25T21:30:42Z")\
**Posts on this page:** 2\
**Page:** 1

<div class="post-metadata">

**Author:** ![JackiePry](https://avatars.discourse-cdn.com/v4/letter/j/aeb1de/32.png) [@JackiePry](https://forum.livingwitherythromelalgia.org/u/JackiePry)\
**Post date:** [February 25, 2017, 9:30pm UTC](https://forum.livingwitherythromelalgia.org/t/living-with-em-for-5-years/2205/1 "2017-02-25T21:30:42Z")

</div>

Hi everyone! Thank you for adding me. I have been suffering from EM for about 5 years but diagnosed about 1 year ago. I have Takayasus arteritis and my vascular medicine doc diagnosed me with EM based on photos and symptoms. They say it’s probably connected to Takayasus.  
I have had a hard time sleeping due to red hot itchy hands and feet. I am on a nerve calming medication but still have problems.  
Thank you again!  
Jackie

---

<div class="post-metadata">

**Author:** ![sheltielife](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/sheltielife/32/733_2.png) [@sheltielife](https://forum.livingwitherythromelalgia.org/u/sheltielife)\
**Post date:** [February 26, 2017, 8:57am UTC](https://forum.livingwitherythromelalgia.org/t/living-with-em-for-5-years/2205/2 "2017-02-26T08:57:56Z")

</div>

I don’t know if it’s relevant to your type of vasculitis, but I have rheumatoid vasculitis. My rheumatologist has done some infusions of Rituximab, which in the UK was only approved for vasculitis last year, initially a cancer drug. It’s made a huge difference and the only thing that ever has.