# Looking for Ways to cope

**URL:** <https://forum.livingwitherythromelalgia.org/t/looking-for-ways-to-cope/3283>\
**Category:** General\
**Created:** [May 25, 2018, 5:23pm UTC](https://forum.livingwitherythromelalgia.org/t/looking-for-ways-to-cope/3283 "2018-05-25T17:23:44Z")\
**Posts on this page:** 1\
**Showing post:** 4

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**Author:** ![Joan](https://avatars.discourse-cdn.com/v4/letter/j/43a26b/32.png) [@Joan](https://forum.livingwitherythromelalgia.org/u/Joan)\
**Post date:** [May 26, 2018, 4:04pm UTC](https://forum.livingwitherythromelalgia.org/t/looking-for-ways-to-cope/3283/4 "2018-05-26T16:04:15Z")

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Hi Jordy,  
Your EM onset sounds very similar to mine. I don’t usually reply to people’s posts but am to yours. I have tried countless drugs and creams with very little help except to make me groggy. 6 months ago I started an accupuncture series with an exceptional acupuncturist. She addresses the neurve damage. I also began doing Bob’s protocol. Soaking my feet in hot water and putting away the fans and cooling devices. It was very hard at first but now I am virtually flare free.For the first time in more years than I can remember I sleep with my feet under the covers all night. Best part is I only take 300mg. of gabapenten a day. I feel as if I have gotten my life back. Even considering getting a zoo pass. If you want more info. just email me. Best of luck, Joan

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