# My visit to the Mayo Clinic in MN **URL:** \ **Category:** General\ **Created:** [February 15, 2019, 6:42am UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775 "2019-02-15T06:42:58Z")\ **Posts on this page:** 7\ **Page:** 2
**Author:** ![Sharonl](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/sharonl/32/216_2.png) [@Sharonl](https://forum.livingwitherythromelalgia.org/u/Sharonl)\ **Post date:** [February 23, 2019, 4:53am UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775/21 "2019-02-23T04:53:13Z")
I have been getting relief from pain with Myaderm CBD cream double strength. It’s transdermal. It is expensive tho. ---
**Author:** ![Deni\_W\_B](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/deni_w_b/32/249_2.png) [@Deni\_W\_B](https://forum.livingwitherythromelalgia.org/u/Deni_W_B)\ **Post date:** [February 23, 2019, 5:56pm UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775/22 "2019-02-23T17:56:33Z")
Shelbysmom, I have not used medical marijuana. I heard about these salves in an online group for neuropathy. If you are like me, I have spent thousands of dollars trying different things, so for the price I thought it was worth trying. The salve really has made a big difference for me - I know everyone is different but it seems to help others (from the online group) as well. ---
**Author:** ![Deni\_W\_B](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/deni_w_b/32/249_2.png) [@Deni\_W\_B](https://forum.livingwitherythromelalgia.org/u/Deni_W_B)\ **Post date:** [February 23, 2019, 6:03pm UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775/23 "2019-02-23T18:03:27Z")
> [@Sharonl](#): > > Myaderm CBD cream Wow that is a bit pricey - the slave I use is $60 for 2 oz but only 1000 mg per container. Glad you found something that works for you!! ---
**Author:** ![Sharonl](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/sharonl/32/216_2.png) [@Sharonl](https://forum.livingwitherythromelalgia.org/u/Sharonl)\ **Post date:** [February 23, 2019, 6:46pm UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775/24 "2019-02-23T18:46:55Z")
**I was using Lidocaine 10% compounded cream for about 3 years and it helped, but for some reason it stopped working. I think it was $60 and lasted three months.** ---
**Author:** ![Sarah1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/sarah1/32/577_2.png) [@Sarah1](https://forum.livingwitherythromelalgia.org/u/Sarah1)\ **Post date:** [December 12, 2019, 11:16am UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775/25 "2019-12-12T11:16:30Z")
Why do u say a neurologist? Just curious bc mayo has dermatology cover EM… ---
**Author:** ![anon16865673](https://avatars.discourse-cdn.com/v4/letter/a/919ad9/32.png) [@anon16865673](https://forum.livingwitherythromelalgia.org/u/anon16865673)\ **Post date:** [December 13, 2019, 12:26am UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775/26 "2019-12-13T00:26:07Z")
Dermatology is not the most effective specialty to be treating EM (in most cases). Although EM cases vary in causes, most stem from a neurological problem that has effects on the endothelium of vessels, whether this be a change in autonomic function or ion channel dysfunction. I was at Mayo Clinic for 3 weeks a year and a half ago or so and I was seen at the EM clinic by dermatologists but they referred me to the neurology department for consult and treatment. A dermatologist can only do so much for a systemic issue but a trained neurologist is the best bet to get to the root of the problem. If it’s any consolation I am now symptom free and was treated using a combination of a neurological and vascular approach. I take mexiletine and use capsaicin cream to dampen sympathetic flow and also take cyproheptadine and feverfew as a serotonin antagonist to relax blood vessels. (Although everyone’s case is different the general idea still holds) ---
**Author:** ![Sarah1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/sarah1/32/577_2.png) [@Sarah1](https://forum.livingwitherythromelalgia.org/u/Sarah1)\ **Post date:** [December 13, 2019, 11:46pm UTC](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775/27 "2019-12-13T23:46:11Z")
I will ask my dr about a neurology referral! How bizarre that they make u jump thru hoops & do derm first!! That is great to hear, and I will def pass on the info to see if my gp can get something moving. [Previous page](https://forum.livingwitherythromelalgia.org/t/my-visit-to-the-mayo-clinic-in-mn/3775.md?page=1)