# Pain under butt when sitting? **URL:** \ **Category:** Symptoms and Treatments\ **Created:** [May 17, 2014, 1:40am UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727 "2014-05-17T01:40:38Z")\ **Posts on this page:** 14\ **Page:** 1
**Author:** ![LynnV](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/lynnv/32/593_2.png) [@LynnV](https://forum.livingwitherythromelalgia.org/u/LynnV)\ **Post date:** [May 17, 2014, 1:40am UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/1 "2014-05-17T01:40:38Z")
Does anybody else have burning pain at the very top of the thighs and under the butt when sitting for a long time? I associate this with the onset of my EM (and peripheral neuropathy) about a year ago. A general web search turns up something called "high hamstring tendinopathy," but I think that's mainly an overuse syndrome, whereas mine began when I'd been sedentary for quite a while because of some fractures. ---
**Author:** ![Nel](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/nel/32/194_2.png) [@Nel](https://forum.livingwitherythromelalgia.org/u/Nel)\ **Post date:** [May 17, 2014, 8:10am UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/2 "2014-05-17T08:10:08Z")
Yes indeed. Ever since the EM started. I rarely sit squarely on a chair because of it. On hospital visits I am always told to sit and wait and get odd looks and sometimes exasperation from the staff because I prefer to stand or hobble around on my crutches until they are ready. I never sit for longer than I have to and then right on the edge of my chair. If I sit back in a chair my back burns too and I get an itchy rash at all pressure points. It was a major problem when I was recovering from my fracture but now I am mobile it is just the same old nuisance it was before. ---
**Author:** ![Domina](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/domina/32/489_2.png) [@Domina](https://forum.livingwitherythromelalgia.org/u/Domina)\ **Post date:** [May 17, 2014, 11:21am UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/3 "2014-05-17T11:21:49Z")
Oh yes - it (thighs and butt) gets rather hot after a very short time (10-15 minutes) of sitting. I use cooling pads to sit on whenever I can. ---
**Author:** ![Dementra](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/dementra/32/155_2.png) [@Dementra](https://forum.livingwitherythromelalgia.org/u/Dementra)\ **Post date:** [May 17, 2014, 1:18pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/4 "2014-05-17T13:18:07Z")
Yep… I hate when that happens… I sit most of the day, so when my butt starts burning I can usually get it to stop by walking around a bit… It never seems to last too long, thankfully. ---
**Author:** ![Alina\_D](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/alina_d/32/281_2.png) [@Alina\_D](https://forum.livingwitherythromelalgia.org/u/Alina_D)\ **Post date:** [May 17, 2014, 5:08pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/5 "2014-05-17T17:08:42Z")
I haven't had it on my butt but I get it every time I lean to one side in my recliner on my arms . My skin will burn where my arm is making contact with the chair. If I cross my legs which I rarely do It will cause that spot of contact to start burning too. Even when I only crossed them for one minute! ---
**Author:** ![Serena](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/serena/32/508_2.png) [@Serena](https://forum.livingwitherythromelalgia.org/u/Serena)\ **Post date:** [May 17, 2014, 6:43pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/6 "2014-05-17T18:43:35Z")
I have the burning from sitting as well. I carry an icepack in a ziplock freezer bag inside a cloth zipper bag and stick it under my butt when I need to sit for a long time. It's not too cold because of the bag, cloth and clothing layers but does the job nicely. I have learned to live with taking my ice "purse" with me nearly everywhere I go. ---
**Author:** ![gtrembley](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/gtrembley/32/589_2.png) [@gtrembley](https://forum.livingwitherythromelalgia.org/u/gtrembley)\ **Post date:** [May 17, 2014, 8:18pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/7 "2014-05-17T20:18:01Z")
I get it sometimes, but I have learned to sit with a coccyx cushion, which helps a lot. It relieves the pressure on the tailbone. When I am at an appointment I have to sit on the edge of the chair, it really aggravates the swelling in my ankles. I have something else I noticed has been happening and wonder if this is part of the EM, my skin turns red whenever I cover it up and I noticed on top of my knees it has been staying red all the time. Is this part of EM? ---
**Author:** ![gtrembley](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/gtrembley/32/589_2.png) [@gtrembley](https://forum.livingwitherythromelalgia.org/u/gtrembley)\ **Post date:** [May 18, 2014, 1:28am UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/8 "2014-05-18T01:28:08Z")
Thanks dkel9307, I am not that bad yet, but I do have to kick my feet out from under the covers at night and I only cover up with a sheet where I used to have a ton of blankets on me to stay warm. I used to cuddle with my husband to warm up, now he is the one who is cold and I get too warm. ---
**Author:** ![Frances](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/frances/32/361_2.png) [@Frances](https://forum.livingwitherythromelalgia.org/u/Frances)\ **Post date:** [May 18, 2014, 2:52pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/9 "2014-05-18T14:52:11Z")
I too have problems with sitting and have to perch on the end of chairs. I cannot sit back against the back rest as the pain in my tailbone is unbearable. I can also not sit for long on high bar chairs as my feet turn purple very quickly and become uncomfortable. ---
**Author:** ![LynnV](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/lynnv/32/593_2.png) [@LynnV](https://forum.livingwitherythromelalgia.org/u/LynnV)\ **Post date:** [May 18, 2014, 2:59pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/10 "2014-05-18T14:59:19Z")
Thanks for the warning about bar chairs--I hadn't thought of that. Terrible not to be able to sit comfortably OR stand, but I'll also keep in mind the advice of many to perch on the edge of a chair. Frances said: > I too have problems with sitting and have to perch on the end of chairs. I cannot sit back against the back rest as the pain in my tailbone is unbearable. I can also not sit for long on high bar chairs as my feet turn purple very quickly and become uncomfortable. ---
**Author:** ![gtrembley](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/gtrembley/32/589_2.png) [@gtrembley](https://forum.livingwitherythromelalgia.org/u/gtrembley)\ **Post date:** [May 18, 2014, 4:11pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/11 "2014-05-18T16:11:23Z")
To everyone out there that is having problems sitting long, you should really try a coccyx cushion as they really do help relieve the pressure on your tailbone. You can purchase them at any medical supply store for around $35. ---
**Author:** ![Anne1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/anne1/32/580_2.png) [@Anne1](https://forum.livingwitherythromelalgia.org/u/Anne1)\ **Post date:** [May 18, 2014, 5:30pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/12 "2014-05-18T17:30:30Z")
I experienced the pain on thighs and butt (and feet) for 20 years before my feet began turning red from EM and I was able to get a diagnosis. I experimented with a dozen kinds of cold packs before I found these ([http://www.amazon.com/gp/product/B000E5CXY2/ref=oh\_details\_o01\_s00\_i00?ie=UTF8&psc=1](http://www.amazon.com/gp/product/B000E5CXY2/ref=oh_details_o01_s00_i00?ie=UTF8&psc=1)). They are tough, durable, and flat, and can take the weight of someone sitting on them for hours at a time, for many months before they finally show signs of wear. I sewed sleeves for them that will hold two at a time, side-by-side. This creates a nice, large sitting surface with some insulation between me and the cold packs. When I pull them fresh out of the freezer, I also double up a towel and lay it over them until they’ve warmed up a bit and I can be sure that they won’t hurt my skin. Best pain killer that I have found yet. ---
**Author:** ![LynnV](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/lynnv/32/593_2.png) [@LynnV](https://forum.livingwitherythromelalgia.org/u/LynnV)\ **Post date:** [May 18, 2014, 11:26pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/13 "2014-05-18T23:26:58Z")
Yes, they do--and I don't think Chillows can take being sat upon for a long time (at least, mine started leaking). Thanks! dkel9307 said: > These look like small chillows, Anne - fantastic! ---
**Author:** ![Anne1](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/anne1/32/580_2.png) [@Anne1](https://forum.livingwitherythromelalgia.org/u/Anne1)\ **Post date:** [May 19, 2014, 1:45pm UTC](https://forum.livingwitherythromelalgia.org/t/pain-under-butt-when-sitting/727/14 "2014-05-19T13:45:29Z")
And for my feet at night, having a small bedside refrigerator and keeping these large, very soft cold packs close at hand has proven tremendously helpful: [http://www.amazon.com/gp/product/B001AB7IF8/ref=oh\_details\_o01\_s00\_i01?ie=UTF8&psc=1](http://www.amazon.com/gp/product/B001AB7IF8/ref=oh_details_o01_s00_i01?ie=UTF8&psc=1) Dear just a little stiff when they are brand-new, but after that they saw often up and you can actually wrap them around your feet.