# Pictures or my EM **URL:** https://forum.livingwitherythromelalgia.org/t/pictures-or-my-em/3992 **Category:** General **Created:** [May 31, 2019, 6:00pm UTC](https://forum.livingwitherythromelalgia.org/t/pictures-or-my-em/3992 "2019-05-31T18:00:08Z") **Posts on this page:** 1 **Showing post:** 8
### Author: ![standing\_cat](https://avatars.discourse-cdn.com/v4/letter/s/e56c9b/32.png) [@standing\_cat](https://forum.livingwitherythromelalgia.org/u/standing_cat) #### Post date: [June 1, 2019, 2:54am UTC](https://forum.livingwitherythromelalgia.org/t/pictures-or-my-em/3992/8 "2019-06-01T02:54:22Z")
> [@graceee06](#): > > It’s awful and embarrassing. I’d be lying if I said I were never self-conscious about how this presents to others (esp. since my face/ears have looked disfiguring in the past, and sometimes still can … and who knows, might get that way or worse at some point in the future). But, I think this might be an opportunity to really chew on that statement, and a chance for self-reflection - what if it didn’t embarrass you at all, but rather made you more confident and bad\*ss? EM is many things, but embarrassing does not need to be one of them. unrelated - the only non-medical treatment options I can think of are: Bob’s protocol, CBD and/or THC, chronic pain therapy/groups, aspirin, antihistamines. I think birth control can potentially help some women, though I’m not sure if that falls into the “taking medicine” category or not! edit - Have you seen Dr. Jay Cohen’s medication / supplement guide? It talks about feverfew, butterbur, magnesium, alpha lipoic acid as possibly being helpful (though anything can possibly be hurtful as well) txt in here - > [@Dr. Jay Cohen - EM Resource](https://forum.livingwitherythromelalgia.org/t/dr-jay-cohen-em-resource/1253/8): > > SUPPLEMENTS AND HERBS IN THE TREATMENT OF ERYTHROMELALGIA Erythromelalgia (EM) is a disorder of the neurovascular system, that is, of the mechanisms controlling the activity of nerves and blood vessels. These neurovascular abnormalities typically affect the skin in the feet and legs, sometimes the hands and arms, and occasionally the ears, nose or other areas. EM has many similarities to migraine disorder, and both disorders can be reactive to a wide range of substances. In migraine, such subs… --- _[View the full topic](https://forum.livingwitherythromelalgia.org/t/pictures-or-my-em/3992)._