# What would improve your quality of life?

**URL:** <https://forum.livingwitherythromelalgia.org/t/what-would-improve-your-quality-of-life/3322>\
**Category:** General\
**Created:** [June 5, 2018, 2:05pm UTC](https://forum.livingwitherythromelalgia.org/t/what-would-improve-your-quality-of-life/3322 "2018-06-05T14:05:16Z")\
**Posts on this page:** 1\
**Page:** 1

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**Author:** ![Little\_K](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/little_k/32/919_2.png) [@Little\_K](https://forum.livingwitherythromelalgia.org/u/Little_K)\
**Post date:** [June 5, 2018, 2:05pm UTC](https://forum.livingwitherythromelalgia.org/t/what-would-improve-your-quality-of-life/3322/1 "2018-06-05T14:05:16Z")

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My name is Kristie and I have Erythromelalgia. I was diagnosed in 2016 and have experienced many challenges. Thanks to my EM support group, I was able to overcome the beginning stages; accepting my new way of living with EM. I am also a doctoral student at the University of Southern California, and my mission is to create an organization or a new innovative service to better support the rare disease community. A large part of my mission is to educate people about the negative effects of loneliness, and helping improve the quality of lives for individuals with a rare disease.

I’d greatly appreciate it if you would take 5 minutes to complete this 100% anonymous survey. Feel free to reach out to me directly by emailing me at ■■■■.

**[https://www.surveymonkey.com/r/5GHHVBG](https://www.surveymonkey.com/r/5GHHVBG)**