# Who’s EM is worse in cold weather? **URL:** \ **Category:** Symptoms and Treatments\ **Created:** [November 2, 2022, 7:59pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042 "2022-11-02T19:59:48Z")\ **Posts on this page:** 9\ **Page:** 1
**Author:** ![cherman](https://avatars.discourse-cdn.com/v4/letter/c/13edae/32.png) [@cherman](https://forum.livingwitherythromelalgia.org/u/cherman)\ **Post date:** [November 2, 2022, 7:59pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/1 "2022-11-02T19:59:48Z")
I was miserable in summer with total body flares. Now in colder weather I’m cold all over but still have feet and hands flare. ---
**Author:** ![JemD](https://avatars.discourse-cdn.com/v4/letter/j/977dab/32.png) [@JemD](https://forum.livingwitherythromelalgia.org/u/JemD)\ **Post date:** [November 4, 2022, 1:58pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/2 "2022-11-04T13:58:35Z")
Hi, I’ve also noticed that I have to avoid getting too cold as well as too hot. Episodes of erythromelalgia are like a ‘rebound’. If my feet, hands and knees get cold during the day and I leave them like that for a while, I’m guaranteed to have erythromelalgia in those areas at night. If I get cold & warm up too quickly it triggers erythromelalgia. Things are much more manageable if I’m able to keep at a comfortable temperature and if I do get cold, I warm any cold areas straight away but gently & gradually. ---
**Author:** ![cherman](https://avatars.discourse-cdn.com/v4/letter/c/13edae/32.png) [@cherman](https://forum.livingwitherythromelalgia.org/u/cherman)\ **Post date:** [November 4, 2022, 2:45pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/3 "2022-11-04T14:45:18Z")
Good advice. I’ll implement this as well. ---
**Author:** ![Alv](https://avatars.discourse-cdn.com/v4/letter/a/eada6e/32.png) [@Alv](https://forum.livingwitherythromelalgia.org/u/Alv)\ **Post date:** [November 5, 2022, 1:35pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/4 "2022-11-05T13:35:22Z")
I agree. At least in my case a suffer from EM and Raynauds, that means I hace to procure to myslef a comfort zone with not too cold or warm environments and especially avoid abrupt changes (contrast between cold/hot and viceversa) ---
**Author:** ![Monkey](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitherythromelalgia.org/monkey/32/626_2.png) [@Monkey](https://forum.livingwitherythromelalgia.org/u/Monkey)\ **Post date:** [November 9, 2022, 2:25am UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/5 "2022-11-09T02:25:04Z")
Do you think you might also have Raynaud’s? I have both. So I’ve got like a few weeks a year where things are calm. ---
**Author:** ![cherman](https://avatars.discourse-cdn.com/v4/letter/c/13edae/32.png) [@cherman](https://forum.livingwitherythromelalgia.org/u/cherman)\ **Post date:** [November 9, 2022, 1:41pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/6 "2022-11-09T13:41:23Z")
Thanks for your comments. My feet have been cold for years. Appears some level of neuropathy. The EM has just shown up in the last year. I have good nights and bad nights. I’m going to take your advice and keep feet warm as day goes on and see if helps keep bad nights away. I tend to over warm with water or dry heat and then feel tingle. We are all trying whatever we can to mitigate daily pains and irritations. ---
**Author:** ![cherman](https://avatars.discourse-cdn.com/v4/letter/c/13edae/32.png) [@cherman](https://forum.livingwitherythromelalgia.org/u/cherman)\ **Post date:** [November 9, 2022, 1:44pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/7 "2022-11-09T13:44:06Z")
Maybe. Can it basically just be in feet or is it hands. Any special treatment for Reynaurds? ---
**Author:** ![Jen1](https://avatars.discourse-cdn.com/v4/letter/j/e274bd/32.png) [@Jen1](https://forum.livingwitherythromelalgia.org/u/Jen1)\ **Post date:** [November 13, 2022, 10:41am UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/8 "2022-11-13T10:41:42Z")
Hi, it’s interesting to read what you say. I am beginning to realise this in the last few days. I have been suffering for 8 months and been recently diagnosed with EM (mainly affecting feet, a little in my ears too) so am learning how to cope. During the summer I was obsessed with keeping cool. I found it more difficult when the weather became cooler and ended up with the problem of my body being cold and shivery yet my feet hot! I continued using my fan and gel packs though. For the last few days I’ve tried not using them so much and started to accept that I can allow my feet to get warm and they don’t always flare! Even when they get red, fingers crossed, they don’t seem to get so painful. I still need to make sure the room doesn’t get too warm though. As you say, it’s doing things gently that seems to be key. It’s all a question of trial and error I suppose and very difficult but if it means less pain, hopefully it’ll be worth it. ---
**Author:** ![cherman](https://avatars.discourse-cdn.com/v4/letter/c/13edae/32.png) [@cherman](https://forum.livingwitherythromelalgia.org/u/cherman)\ **Post date:** [November 13, 2022, 1:13pm UTC](https://forum.livingwitherythromelalgia.org/t/who-s-em-is-worse-in-cold-weather/6042/9 "2022-11-13T13:13:45Z")
Good to hear others stories and hints. Makes one feel that we are not alone in this. Best to you.