A letter to people without chronic pain

I'm sorry, I hadn't read everything. I know there aren't diseases, there are patients and everyone is different but CarterDK and Dragica are right, the cure might come next week or tomorrow even and it would be a waste, you can do so much if you're around, please don't give up.


Hi Pelztier.

I just wanted you to know that I think both you and Frostbite are so very brave. I hope you will choose to continue with your lives. You both are so knowledgeable and can offer so much. I send my positive wishes to you as well.

Dragica

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pelztier86 said:

Forstbite, I can so relate.

I am giving up as well. Life is unfair, and the only free decision I still have is to determine when my life and hence, my suffrance end. Maybe this will wake up some special people. those who got me to the point I am now - physically and mentally. But I guess even this wont happen, the world will keep moving as if nothing had happened.

When mads asked us some time back what we have gained from having EM I replied that I could see no bright side to EM. She reminded me of our online friendship and all the wonderful people we have met on LWE and Frostbite and Peltzier that includes both of you. We need you in the group and please don’t think of leaving us.
When I first joined I was hard put to it to find any research going on so there has been a huge change and we all have a part to play by banding together to share our experiences, our successes and our failures. In the few short years we have known each other we have all reached out to others to advise, sympathise, empathise and above all care. I wish we lived near enough to share a real hug over a cup of tea but can at least send you a virtual one:)
I like what Dragica said about waiting until tomorrow and seeing how you feel and then get through the day and again wait until tomorrow and don’t ever give up hope.
See you both tomorrow!

Dear Frostbite and Peltzier, and everyone else here: Sending you lots of compassion, empathy and light. You are important to all of us and I hope you decide to continue on. I agree that it's very hard to stay positive day after day, and sometimes all we can do is to tread water and/or float for a time. As someone else said, new treatments are coming up day by day. I hope you will hang in there, and let us support you.

http://www.suicide.org/suicide-hotlines.html
1-800-■■■■■■■■

I’m tired of holding destroyed, broken people whose lives are ruined because someone they loved gave up.

This life is yours, but how much of it also belongs to the people who love you? Please, don’t give up.

My life has been hell since I was 4 years old. I was first suicidal at the age of 7.

I ended up with extremely severe PTSD. And it was constant… for 25 years. You cannot imagine. Reliving the horrors every single moment.

At one point, I said to myself, why don’t I just give up? After 25 years of this, there is no way I will ever get better. There is no hope. I would have to be stupid to think there was any hope. I will be trapped in this unbearable agony forever.

But I kept going because there are people that love me, no matter how flawed they are.

And then I got better. Within 1 year of that bleak realization that there was no way in hell that things would ever truly improve… I got better.

I am 36 now. I have had so many years of peace. And yeah, this EM thing can be excruciating and my entire body and health is a nightmarish joke.

But I will keep going because even nightmares eventually end. Even when there seems to be no possible way they could.

That’s how hell works. If you keep going, eventually you get to the other side. And if you keep going, you don’t sentence everyone around you to their own hell, like a suicide bomber, maiming those closest to you the worst.

Don’t blow up. You have got to be as strong as that seven year old me was. I believe you are.

And get help. Please. That’s the real power you hold. Choosing when to give up is a choice, sure. But so is choosing to fight. How much more powerful is that? I believe you can choose to fight and that’s the best way to tell people who don’t understand that they can f$€£ off. By being courageous and telling them to go to hell.