General

Blog Erythromelalgia 101 (Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Articles and Research The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements. What's New With You? Tell us what you have been up to lately. Photos

Topic	Replies	Views	Activity
About the General category General	1	1893	January 17, 2018
Update to my Best Christmas Present Blog Blog	2	265	February 26, 2026
What are ways to manage pain? General	4	423	February 25, 2026
I really need to make a friend General	15	93	February 6, 2026
To Mexitil or not? What's New With You?	18	1058	February 3, 2026
Does Sugar trigger EM Symptoms? General	2	779	February 3, 2026
EM or raynaud's? General	16	3064	January 16, 2026
How do you cope with the heat in summer? Photos stories , symptoms , treatment	3	83	January 6, 2026
Foods that don’t trigger Erythromelalgia 101 treatment , symptoms	2	80	January 4, 2026
Anyone in Norway with this terrible desease? General	0	13	December 28, 2025
Looking for local friends with the condition- DC metro area General	0	17	November 28, 2025
Does this match your EM? General	5	92	October 18, 2025
Pain Doc thinks Spinal Nerve Block could help EM pain General	18	872	October 5, 2025
Anyone else with small fiber neuropathy and erythromelalgia? General	69	9443	July 30, 2025
EM/Progression/SSRI’s General	2	142	July 6, 2025
Surgery? General	6	1000	June 12, 2025
Calcium Channel Blockers: Good vs. Bad General	6	1444	June 12, 2025
Has anyone been prescribed NIFEDIPINE? Did it make your EM symptoms worse? General treatment , symptoms	8	578	June 12, 2025
Erythromelalgia recent diagnosis General stories , treatment	6	87	May 31, 2025
Driving🚗 General	5	85	April 2, 2025
EM is ruining my life?! General	25	2920	November 13, 2024
Having kids General	2	71	October 15, 2024
My EM improvement in photos with a timeline and medications that helped me Photos	59	5116	July 22, 2024
Flippant doctors General	25	1944	July 22, 2024
Erythromelalgia and Scleroderma any connection? General symptoms	4	417	April 29, 2024
Tips for exercise and symptom control General	8	1806	April 20, 2024
Asking for opinions General	1	329	February 6, 2024
To much b6 in my blood work Erythromelalgia 101	2	254	January 18, 2024
Looking Your Stories - How has this site benefited you? General	1	229	January 9, 2024
Is it healthy to allow symptoms to persist? (and what worked for my symptoms) General stories , treatment , symptoms	3	819	December 14, 2023