General

Blog Erythromelalgia 101 (Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Articles and Research The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements. What's New With You? Tell us what you have been up to lately. Photos

Topic	Replies	Views	Activity
About the General category General	1	1890	January 17, 2018
Looking for local friends with the condition- DC metro area General	0	7	November 28, 2025
How do you cope with the heat in summer? Photos stories , symptoms , treatment	2	38	November 15, 2025
I really need to make a friend General	13	61	October 23, 2025
Does this match your EM? General	5	80	October 18, 2025
Pain Doc thinks Spinal Nerve Block could help EM pain General	18	851	October 5, 2025
Anyone else with small fiber neuropathy and erythromelalgia? General	69	9307	July 30, 2025
EM/Progression/SSRI’s General	2	127	July 6, 2025
Surgery? General	6	994	June 12, 2025
Calcium Channel Blockers: Good vs. Bad General	6	1428	June 12, 2025
Has anyone been prescribed NIFEDIPINE? Did it make your EM symptoms worse? General treatment , symptoms	8	555	June 12, 2025
Erythromelalgia recent diagnosis General stories , treatment	6	74	May 31, 2025
Driving🚗 General	5	70	April 2, 2025
What are ways to manage pain? General	2	389	March 3, 2025
EM is ruining my life?! General	25	2905	November 13, 2024
Having kids General	2	64	October 15, 2024
My EM improvement in photos with a timeline and medications that helped me Photos	59	5030	July 22, 2024
Flippant doctors General	25	1938	July 22, 2024
Erythromelalgia and Scleroderma any connection? General symptoms	4	401	April 29, 2024
Tips for exercise and symptom control General	8	1787	April 20, 2024
Asking for opinions General	1	322	February 6, 2024
To much b6 in my blood work Erythromelalgia 101	2	250	January 18, 2024
Looking Your Stories - How has this site benefited you? General	1	224	January 9, 2024
Is it healthy to allow symptoms to persist? (and what worked for my symptoms) General stories , treatment , symptoms	3	815	December 14, 2023
EM symptoms but only in winter? General stories , symptoms	2	340	October 23, 2023
Lipoprotein A General	0	293	October 21, 2023
ADHD, sensory integration issues and erythromelalgia General	20	2052	July 2, 2023
Medication that works What's New With You?	44	3646	June 23, 2023
My history of EM General	9	412	June 22, 2023
Preparing for Your Doctor’s Appointment General	1	206	June 22, 2023