General

Blog Erythromelalgia 101 (Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Photos Articles and Research The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements. What's New With You? Tell us what you have been up to lately.

Topic	Replies	Views	Activity
About the General category General	1	1840	January 17, 2018
Erythromelalgia and Scleroderma any connection? General symptoms	2	18	April 24, 2024
Tips for exercise and symptom control General	8	1707	April 20, 2024
Asking for opinions General	1	159	February 6, 2024
To much b6 in my blood work Erythromelalgia 101	2	130	January 18, 2024
Looking Your Stories - How has this site benefited you? General	1	119	January 9, 2024
My EM improvement in photos with a timeline and medications that helped me Photos	57	4715	January 7, 2024
Is it healthy to allow symptoms to persist? (and what worked for my symptoms) General stories , treatment , symptoms	3	651	December 14, 2023
EM symptoms but only in winter? General stories , symptoms	2	246	October 23, 2023
Lipoprotein A General	0	233	October 21, 2023
ADHD, sensory integration issues and erythromelalgia General	20	1986	July 2, 2023
Medication that works What's New With You?	44	3555	June 23, 2023
My history of EM General	9	334	June 22, 2023
Preparing for Your Doctor’s Appointment General	1	182	June 22, 2023
Bobs protocol General	28	4478	June 22, 2023
EM and other neurological disorders General	3	599	June 14, 2023
7 Things to Look for When Choosing a Doctor General	0	279	May 18, 2023
For everybody who has nerve pain and dont know why General	1	334	May 14, 2023
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney General	0	256	April 26, 2023
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD General	0	244	April 13, 2023
Diagnosed with CRPS General	2	283	March 27, 2023
Low blood pressure! Experiences? Anyone on meds for it? General	11	326	March 11, 2023
Do you think EM is the most painful and the most terrible disease of the world? General	2	367	March 11, 2023
Wheelchair and disability General	32	1887	March 10, 2023
Ben’s Friends inks partnership with ClozTalk General	0	181	March 9, 2023
Rare Disease Diagnosis: Difficulties and Advancements General	0	225	March 8, 2023
Pain,pain,pain! General	20	549	February 28, 2023
How Frequent Are Your EM Flares? General	22	828	February 28, 2023
Looking for Ways to cope General	10	1251	February 28, 2023
Global Genes’ Rare Daily website features Ben Munoz General	0	131	February 23, 2023