General

Blog Erythromelalgia 101 (Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Articles and Research The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements. What's New With You? Tell us what you have been up to lately. Photos

Topic	Replies	Views	Activity
About the General category General	1	1891	January 17, 2018
Update to my Best Christmas Present Blog Blog	2	259	February 26, 2026
What are ways to manage pain? General	4	410	February 25, 2026
I really need to make a friend General	15	90	February 6, 2026
To Mexitil or not? What's New With You?	18	1042	February 3, 2026
Does Sugar trigger EM Symptoms? General	2	770	February 3, 2026
EM or raynaud's? General	16	3047	January 16, 2026
How do you cope with the heat in summer? Photos stories , symptoms , treatment	3	72	January 6, 2026
Foods that don’t trigger Erythromelalgia 101 treatment , symptoms	2	62	January 4, 2026
Anyone in Norway with this terrible desease? General	0	12	December 28, 2025
Looking for local friends with the condition- DC metro area General	0	15	November 28, 2025
Does this match your EM? General	5	90	October 18, 2025
Pain Doc thinks Spinal Nerve Block could help EM pain General	18	870	October 5, 2025
Anyone else with small fiber neuropathy and erythromelalgia? General	69	9424	July 30, 2025
EM/Progression/SSRI’s General	2	140	July 6, 2025
Surgery? General	6	1000	June 12, 2025
Calcium Channel Blockers: Good vs. Bad General	6	1442	June 12, 2025
Has anyone been prescribed NIFEDIPINE? Did it make your EM symptoms worse? General treatment , symptoms	8	566	June 12, 2025
Erythromelalgia recent diagnosis General stories , treatment	6	80	May 31, 2025
Driving🚗 General	5	83	April 2, 2025
EM is ruining my life?! General	25	2915	November 13, 2024
Having kids General	2	70	October 15, 2024
My EM improvement in photos with a timeline and medications that helped me Photos	59	5080	July 22, 2024
Flippant doctors General	25	1943	July 22, 2024
Erythromelalgia and Scleroderma any connection? General symptoms	4	409	April 29, 2024
Tips for exercise and symptom control General	8	1791	April 20, 2024
Asking for opinions General	1	328	February 6, 2024
To much b6 in my blood work Erythromelalgia 101	2	252	January 18, 2024
Looking Your Stories - How has this site benefited you? General	1	228	January 9, 2024
Is it healthy to allow symptoms to persist? (and what worked for my symptoms) General stories , treatment , symptoms	3	818	December 14, 2023