General

Blog Erythromelalgia 101 (Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Articles and Research The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements. Photos What's New With You? Tell us what you have been up to lately.

Topic	Replies	Views	Activity
About the General category General	1	1885	January 17, 2018
EM is ruining my life?! General	25	2850	November 13, 2024
Having kids General	2	50	October 15, 2024
My EM improvement in photos with a timeline and medications that helped me Photos	59	4911	July 22, 2024
Flippant doctors General	25	1928	July 22, 2024
Erythromelalgia and Scleroderma any connection? General symptoms	4	371	April 29, 2024
Tips for exercise and symptom control General	8	1773	April 20, 2024
Asking for opinions General	1	311	February 6, 2024
To much b6 in my blood work Erythromelalgia 101	2	238	January 18, 2024
Looking Your Stories - How has this site benefited you? General	1	215	January 9, 2024
Is it healthy to allow symptoms to persist? (and what worked for my symptoms) General stories , treatment , symptoms	3	804	December 14, 2023
EM symptoms but only in winter? General stories , symptoms	2	306	October 23, 2023
Lipoprotein A General	0	286	October 21, 2023
ADHD, sensory integration issues and erythromelalgia General	20	2015	July 2, 2023
Medication that works What's New With You?	44	3611	June 23, 2023
My history of EM General	9	391	June 22, 2023
Preparing for Your Doctor’s Appointment General	1	204	June 22, 2023
Bobs protocol General	28	5114	June 22, 2023
EM and other neurological disorders General	3	697	June 14, 2023
7 Things to Look for When Choosing a Doctor General	0	301	May 18, 2023
For everybody who has nerve pain and dont know why General	1	378	May 14, 2023
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney General	0	304	April 26, 2023
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD General	0	267	April 13, 2023
Diagnosed with CRPS General	2	326	March 27, 2023
Low blood pressure! Experiences? Anyone on meds for it? General	11	352	March 11, 2023
Do you think EM is the most painful and the most terrible disease of the world? General	2	412	March 11, 2023
Wheelchair and disability General	32	1956	March 10, 2023
Ben’s Friends inks partnership with ClozTalk General	0	200	March 9, 2023
Rare Disease Diagnosis: Difficulties and Advancements General	0	253	March 8, 2023
Pain,pain,pain! General	20	587	February 28, 2023