General
Blog Erythromelalgia 101 (Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Articles and Research The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements. Photos What's New With You? Tell us what you have been up to lately.
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Become a Champion for Our Rare Disease Community
Thank you for being an essential part of our Ben’s Friends community. Today, I want to invite you to take your support a step further by becoming a fundraiser for our “Friends Helping Friends” campaign. What does it mea… |
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1 | 11 | November 19, 2024 |
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Join Us in Strengthening Our Rare Disease Community
I hope this message finds you well. As a valued member of our Ben’s Friends community, I’m reaching out to share an important initiative that directly impacts the support we provide to individuals like you who are affect… |
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1 | 26 | November 15, 2024 |
| About the General category |
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1 | 1885 | January 17, 2018 |
| EM is ruining my life?! |
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25 | 2840 | November 13, 2024 |
| Having kids |
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2 | 47 | October 15, 2024 |
| My EM improvement in photos with a timeline and medications that helped me |
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59 | 4899 | July 22, 2024 |
| Flippant doctors |
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25 | 1925 | July 22, 2024 |
| We Need Your Financial Support |
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1 | 34 | July 13, 2024 |
| Erythromelalgia and Scleroderma any connection? |
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4 | 368 | April 29, 2024 |
| Tips for exercise and symptom control |
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8 | 1770 | April 20, 2024 |
| Asking for opinions |
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1 | 311 | February 6, 2024 |
| To much b6 in my blood work |
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2 | 238 | January 18, 2024 |
| Looking Your Stories - How has this site benefited you? |
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1 | 214 | January 9, 2024 |
| Is it healthy to allow symptoms to persist? (and what worked for my symptoms) |
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3 | 802 | December 14, 2023 |
| EM symptoms but only in winter? |
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2 | 303 | October 23, 2023 |
| Lipoprotein A |
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0 | 286 | October 21, 2023 |
| ADHD, sensory integration issues and erythromelalgia |
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20 | 2014 | July 2, 2023 |
| Medication that works |
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44 | 3611 | June 23, 2023 |
| My history of EM |
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9 | 390 | June 22, 2023 |
| Preparing for Your Doctor’s Appointment |
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1 | 204 | June 22, 2023 |
| Bobs protocol |
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28 | 5078 | June 22, 2023 |
| EM and other neurological disorders |
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3 | 696 | June 14, 2023 |
| 7 Things to Look for When Choosing a Doctor |
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0 | 301 | May 18, 2023 |
| For everybody who has nerve pain and dont know why |
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1 | 377 | May 14, 2023 |
| Spotlight on Our ModSupport Member: Sharon a.k.a Stoney |
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0 | 304 | April 26, 2023 |
| Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD |
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0 | 266 | April 13, 2023 |
| Diagnosed with CRPS |
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2 | 325 | March 27, 2023 |
| Low blood pressure! Experiences? Anyone on meds for it? |
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11 | 351 | March 11, 2023 |
| Do you think EM is the most painful and the most terrible disease of the world? |
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2 | 411 | March 11, 2023 |
| Wheelchair and disability |
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32 | 1954 | March 10, 2023 |