General

Blog Erythromelalgia 101 (Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Articles and Research The studies in this section may be preliminary rather than authoritative and may not be peer reviewed. They are here for your information, but should not be used as recommendations for new treatments, diets, or supplements. What's New With You? Tell us what you have been up to lately. Photos

Topic	Replies	Views	Activity
About the General category General	1	1775	January 17, 2018
ADHD, sensory integration issues and erythromelalgia General	20	1908	July 2, 2023
Medication that works What's New With You?	44	3442	June 23, 2023
My history of EM General	9	231	June 22, 2023
Preparing for Your Doctor’s Appointment General	1	131	June 22, 2023
Bobs protocol General	28	3561	June 22, 2023
EM and other neurological disorders General	3	399	June 14, 2023
7 Things to Look for When Choosing a Doctor General	0	147	May 18, 2023
For everybody who has nerve pain and dont know why General	1	189	May 14, 2023
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney General	0	188	April 26, 2023
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD General	0	180	April 13, 2023
Diagnosed with CRPS General	2	185	March 27, 2023
Low blood pressure! Experiences? Anyone on meds for it? General	11	280	March 11, 2023
Do you think EM is the most painful and the most terrible disease of the world? General	2	243	March 11, 2023
Wheelchair and disability General	32	1791	March 10, 2023
Ben’s Friends inks partnership with ClozTalk General	0	100	March 9, 2023
Rare Disease Diagnosis: Difficulties and Advancements General	0	110	March 8, 2023
Pain,pain,pain! General	20	493	February 28, 2023
How Frequent Are Your EM Flares? General	22	758	February 28, 2023
Looking for Ways to cope General	10	1181	February 28, 2023
Global Genes’ Rare Daily website features Ben Munoz General	0	82	February 23, 2023
Some of Ben’s Friends secrets to maintaining healthy communities General	0	86	February 21, 2023
What’s Your And? Podcast features Scott Orn General	0	102	February 9, 2023
Benefits of Having a Rare Disease and Chronic Illness Support Group General	0	100	February 6, 2023
Once Upon a Gene podcast Features Ben’s Friends General	0	101	January 31, 2023
Ben’s Friends Lead Interns General	0	82	January 27, 2023
Red Scrotum Syndrome (RSS) Blog treatment	4	116	January 26, 2023
Nonprofit SnapCast features Ben Munoz General	0	71	January 26, 2023
UK sufferers please! Blog	17	1182	January 19, 2023
Two Disabled Dudes Podcast features Ben Munoz General	0	113	January 18, 2023