Anyone in Norway with this terrible desease?

I found out what’s happening with my hands and feet by googling the symptems: burning pain and hot and red hands and feet. Not all limbs at the same time, but the pain wakes me up at night. I have had polyneuropathy for some time and that hurts as hell too. I see that this illness is very rare, so I’m wondering if there are some other Norwegians who have it too.