I’ve had EM for three years. It started in my toes. I thought it was due yo my fibromyalgia. I just lived with the pain , thinking There was nothing I could do.
In April it moved into my ankles causing the pain to explode! I was finally able to see a doctor last week who prescribed Tegratol. I thought I had hope, but now it’s in my knees, and with weather heating up I can’t sleep more than thirty minutes before needing to soak my feet. The pain at night is so much worse at night that I can barely stand with the aid of crutches.
I’m frightened, alone, and I don’t want to live like this. I don’t think there is hope.
Does anyone get better?