I have EM, FM and Ray's and as far as I can tell there is no one in my family that has ever had this. I am currently working with a pain doctor (who diagnosed me) and we continue to try new treatments. So far the only real help I have benefited from is Claritin (anithistamine). I take it daily and it has eliminated almost all my daytime flares. I still have night flares. I have tried other antihistamines but they do not work for me so I stick with Claritin.
I do not know why I have these disorders but I did have "ulnar" nerve transposition surgery six months before the onset of EM. Coincidental? Maybe, maybe not. I doubt they can figure it out...... Currently my pain is fairly under control, I take Gabapenten and Nortriptiline. I do suffer side effects from the Gaba but it's better than the mind blowing pain.
I'm still trying to figure out how to get around this sight. I haven't figured out how to read the stories each of you have written........i will keep working at it. Any tips would be appreciated.
I have no family history of anything, apart from my mother and three sisters all having mild Raynaud's. I developed EM at the age of seven, Raynaud's at the age of eleven and in the last few months have raised the possibility that the aches and pains, exhaustion, etc could all be due to fibromyalgia instead of it being dismissed as side effects of the opiates I took.
I am hoping to have my genetic profile done soon, so I will know if this is simply bad luck due to a spontaneous mutation or if my siblings also have the possibility to pass on EM. I want to know asap as two of my siblings are married and I expect they'll want to start having kids soon.
I too want to know if I can pass this down I have 3 kids and 3 grandbabies and 1 more due in Sept.I hope I can't pass it down.My grandbabies are what keep me fighting to not give into my EM.I think mine may of came from my dads side of the family but not sure.My dads mom died at age 22 from a bloodclot giving birth to his sister.His dad died when I was 6 from Aplastic Anemia which they thought was caused by Chemicals he worked with.My dad died in 2003 from Giian Barr not sure if spelled it right they thought it was caused from a flu shot.
starsmurf said:
I have no family history of anything, apart from my mother and three sisters all having mild Raynaud's. I developed EM at the age of seven, Raynaud's at the age of eleven and in the last few months have raised the possibility that the aches and pains, exhaustion, etc could all be due to fibromyalgia instead of it being dismissed as side effects of the opiates I took.
I am hoping to have my genetic profile done soon, so I will know if this is simply bad luck due to a spontaneous mutation or if my siblings also have the possibility to pass on EM. I want to know asap as two of my siblings are married and I expect they'll want to start having kids soon.
Thats interesting about the Claritin I will ask my dr about it.I also take Asprin and Nortriptyline but at work I have to wear protective clothing and a hair bonnet which help keep the heat in.I to am learning how to navigate this websight.I''m not real computer savy.But I have found everyone here really helpful.
Norahs said:
I have EM, FM and Ray's and as far as I can tell there is no one in my family that has ever had this. I am currently working with a pain doctor (who diagnosed me) and we continue to try new treatments. So far the only real help I have benefited from is Claritin (anithistamine). I take it daily and it has eliminated almost all my daytime flares. I still have night flares. I have tried other antihistamines but they do not work for me so I stick with Claritin.
I do not know why I have these disorders but I did have "ulnar" nerve transposition surgery six months before the onset of EM. Coincidental? Maybe, maybe not. I doubt they can figure it out...... Currently my pain is fairly under control, I take Gabapenten and Nortriptiline. I do suffer side effects from the Gaba but it's better than the mind blowing pain.
I'm still trying to figure out how to get around this sight. I haven't figured out how to read the stories each of you have written........i will keep working at it. Any tips would be appreciated.
I am new to this site and just researching this condition. I noticed that your condition seemed to begin like mine. I'm 40 years old, very fit and love to excercise. About 1 1/2 years ago, I had bad knee pain, shooting pain up my left side and hip. Then, it started with numbness, itching, almost a frost-bit like feel in foot and hand, alternating with redness and slight burning (not terrible like some people). It has gotten worse and now is in my left hand. I had no symptoms for weeks, but a few weeks ago was running and had the same knee pain again. Since then, my symptoms have been really bad. How are you doing?
sarah said:
Hi, I have exactly same as you,no family history,just come about 2 half yrs ago,I was fit,energenic,and attended the gym everyday for 90 mins-120 mins,until this where started,I got sore painful knee,and in the end had to stop,I have heard it can all stem from a injury weather this is true or not I don't no,all I do no is I suffer bad with my knee,I have bad back,from injury wen I was teenager,and now constent pain,which as I go on it seem to get worse effecting diff areas,mine started with hands feet been cold but yet burning,then burning,itching of arms,to now it making me burn all over,feet,hands sore swollen,and can't stand walk for long periods of times,it make u wonder what gona wake up with nxt,and u go to gps and they can't offer advice cos they don't no anything about it,don't it make u depressd....