Hello! I am currently in search of a physician in the Hudson Valley, New Yorl area that can diagnose and treat Erythromelalgia. I have a gut feeling this is what I have. I have the classic symptoms after doing my own research. I had a very big life changing/stressful event happen in June '24. My symptoms started in Aug '24 and got progressively worse in Nov '24. I realized then that this was more than a stress response. It is impacting my daily life. I don’t like to leave the house because I dread a flare up and it’s uncomfortable. My current symptoms are: I have become heat intolerant/very sensitive to heat. Wearing shoes/socks/slippers triggers flares in my feet, blow drying my hair and/or cooking causes a flare in my hands, taking showers causes my body to feel like it’s burning on the inside, wearing clothes causes me to feel very warm and sweat, wearing a winter coat causes me to sweat and again, feel like I’m on fire, I sweat profusely at night while I sleep even though I sleep with my feet outside the covers and wear shorts and a tank top. I don’t feel like I’m having hot flashes, if that makes sense. Sometimes I will feel warmth in my lady parts, as embarrassing as that sounds. I work from home. I can be sitting at my desk and feeling chilly but I will notice my armpits to be dripping in sweat. Makes me feel so gross. I have seen a neuro. She wants me to get an MRI to rule out MS. My insurance denied it twice. I had blood work done. I am negative for Lupus and Lyme’s. My B vitamins are all in range. A1C and glucose are normal. My vitamin D, Iron and Ferritin are VERY low though. I’m hesitant to have an iron infusion because I read on reddit posts that people have had increased symptoms of EM after having an iron infusion. I want to add that I was supplementing with Iron tablets between Aug and Nov of last year and my symptoms did get worse. Even more of a reason I’m nervous to have an iron infusion. I saw a vascular doctor who said this is not a vascular issue. My neuro isn’t sure what is going on. I have an appointment with my primary this coming Wednesday. I am open to trying anything with the exception of oral medications. I will use them as a last resort. I already take meds for cholesterol and anxiety. I am very sensitive and have a lot of side effects to meds. Any thoughts/feedback are welcome and thanks so much in advance!