@graceee06 I also get tingling sensation even when I’m not walking. Today my thighs are burning like hell, I feel needles and pins like small electric shocks all over my body. I can’t figure out what has caused this terrible flare. I ate the same things like the day before, I was just standing for half an our. I can’t give you any word of comfort as I am in an acceptance phase of the disease like you. I can’t imagine myself living like this for the rest of my life. I pray for EM to go away, but it’s getting worse every day. I don’t think I am mentally strong enough to accept the limitations. In my opinion it depends on the character of the person. Some people live normal life and get into a remisson. Don’t give up, with your age and good dedicated specialist who will treat you with every single medication available, you have a great chance to live a happy normal life. One boy Ryan Junes is completly EM free, after received IV Lidocaine infusion.
Here is the video link: https://youtu.be/ULydWVhsnk4
Be strong, take care Frankie