Triggers besides exercise and heat?

General
21

Yes, the natural sunlight affects me too. I wear socks with my flipflops and problem solved somewhat.

22

I too take just a baby aspirin and do ok, doctor prescribed. I have macrocytosis too without anemia. So far, need nothing else for painā€¦fingers crossed. 6 yrs into this.

23

Direct sunlight. I move from patch of shade to patch of shade as best I can. Because I can only wear sandals, my feet are always exposed. 15 min in direct sunlight, even with the setting sun, burns my feet and is painful.

24

Is ambient temperature a variable in your reaction to direct sunlight? For instance, does direct sunlight with an ambient air temperature of 60 degrees provoke the same reaction as direct sunlight with an ambient air temperature of 85 degrees?

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25

I donā€™t know. Iā€™ve never tracked it like that. What I do know is that I live in N. Washington, where the weather rarely hits 85 degrees. Direct sunlight burns whether it is at noon or from the setting sun.

26

OK. What about if itā€™s 35 or 40 degrees? Is there any ambient temperature at which direct sunlight does not provoke symptoms? The human body loses heat in air temperatures below 68Ā°F. On a cold day body heat is lost via radiation (transfer of heat through inferred rays without any direct contact), convection (movement of cool air across the skin), and conduction (transfer of heat from one object to another, such as standing upon a cold ground). Are you simply not exposing the affected skin to direct sunlight at cold temperatures or is there no specific temperature threshold that provokes symptoms?

46

Yes, I have numbness in my toes. I also suffer from 2 kinds of neuropathy. Iā€™m allergic to Cymbalta so my dr put me on Lyrica. My Dermatologist suggested I try Sarna. Itā€™s an over the counter lotion. I use it in between my compounds and so far it seems to help with the burning. I am in constant pain ALL the time.

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47

Being near cigerette smoke doesnt seem to help in avoiding triggers much (I have limited choice in the matter as people smoke in their rooms and it makes it to me)

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48

knitted socks, well walking in knitted socks, I donā€™t know if any one said stress yet, but it doesnā€™t help in the least bit (the more there is, the worse the flare ups) my migraines sometimes set of flares, believe it or not, but walking from a cool area to a warmer area shocks my body with flares.

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49

Cold tile in the winter almost always makes me flare if Im already close to one. If Iā€™m not close to a flare, tile feels good.

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50

Direct sunlight no matter the temperature causes immediate flares

51

I know this an old thread, but the sunlight issue is so real! But socks and shoes in the summer? Yeah, right. For me the solution has been Keens sandalsā€”they make a closed toe sandal. More like a well-ventilated shoe, really, and I find that thatā€™s a magic combination. My skin is sufficiently shaded to not trigger a flare, but also sufficiently ventilated to stay at a reasonable temperature.