Melodie...your French translation of my original post, when translated to English, loses some meaning but the ideas are there.
I is difficult to tell you if noisette Witch is a good medication. It has a sligth effect. Clonazepan is much better but you need to have a doctor prescription .... Try "Paracetamol with codeïne" when you cannot sleep because burnings.
It take 1 cachet every night when I was awake around 2 or 3 am and l can sleep without suffering during 3 or 4 hours.
rondp43 said:
Melodie ... votre traduction française de mon poste d'origine, quand traduit en anglais, perd un sens, mais les idées sont là.
True. I don't have any concomitant disorders and have normal heart function, blood pressure, etc. That's probably why my doctor was comfortable prescribing it as a first line therapy. The doctor i'm seeing does have substantial experience treating EM (by EM standards, at least, where treating 5 or more patients is a lot), so the decision may have been based on prior clinical experience.
Dragica said:
HI folks.
I just wanted to respond to CarterDK's post. Carter, I am so pleased that you have found a medication that helps your EM--that's great!
I just wanted to clarify that one of the reasons that doctors are unwilling to prescribe Mexiletine right away is because of its potentially dangerous side effects. This is why other drugs with less serious side effects are tried first. Also Mexiletine is useful for only some people with EM--it depends a lot on the location of the defect(s) causing EM symptoms. And I believe that I have read that for others this drug has made their symptoms worse. EM is a mixed bag--we're all very different--this is why one drug combo works for some and not for others.
Cheers,
Dragica
I've seen 13 doctors since my problems began. Eventually my HMO took over the search. From what they told me, I think they just sent out a mass message to every doctor in requisite fields asking if they had experience with EM. Pretty much the same thing you're doing. Finding a doctor with experience treating EM is akin to finding a four leaf clover. I wish you luck!
rondp43 said:
Hi CarterDK...thanks for "chiming in" :-) My problem now is finding a doctor that knows something about EM. I have been to see my primary doctor and one foot specialist and neither one knew anything about EM. I'm not sure where to go from here. I have been searching for any doctor within 25 miles and now I'm going to send their office a email asking if they can treat EM. I will be sending out over 150 emails so this could get interesting. LOL
I'm holding my breath but I think I'm having a major EM breakthrough happening. I started taking Magnesium 2 weeks ago and at first I didn't see any results. But for the last 3 days, I realized this morning at 05:00 that I had no pain whatsoever. Because I also had no pain in the evenings, I have not been taking my bedtime Gabapentin or the 3 Tylenol. I am taking only a small dose of magnesium 100mg per day. I am going to increase it to 200mg per day and see what happens. I am really thrilled but I do want to be cautious because something else could also be going that I'm not aware of.
Melodie...how much Magnesium are you taking?
I'm really happy for you and I hope that this great improvement will continue long ago ! I had given up too ... but when I read your post this morning, I immediately resumed my magnesium !!!!
Dr. Cohen advises to order on the site MYPROTEIN.com, located in Northwich UK. for its high quality. It is magnesium citrate and 400mg correspond to 2.6 g of this powder. Check on this English site : you will understand better than me! I
I take this time half dose : 1g13 (I bought a mini scale to measure)
Where do you get your magnesium?
..
rondp43 said:
I'm holding my breath but I think I'm having a major EM breakthrough happening. I started taking Magnesium 2 weeks ago and at first I didn't see any results. But for the last 3 days, I realized this morning at 05:00 that I had no pain whatsoever. Because I also had no pain in the evenings, I have not been taking my bedtime Gabapentin or the 3 Tylenol. I am taking only a small dose of magnesium 100mg per day. I am going to increase it to 200mg per day and see what happens. I am really thrilled but I do want to be cautious because something else could also be going that I'm not aware of.
Melodie...how much Magnesium are you taking?
Melodie said:
I'm really happy for you and I hope that this great improvement will continue long ago ! I had given up too ... but when I read your post this morning, I immediately resumed my magnesium !!!!
Dr. Cohen advises to order on the site MYPROTEIN.com, located in Northwich UK. for its high quality. It is magnesium citrate and 400mg correspond to 2.6 g of this powder. Check on this English site : you will understand better than me! I
I take this time half dose : 1g13 (I bought a mini scale to measure)
Where do you get your magnesium?
..
rondp43 said:I'm holding my breath but I think I'm having a major EM breakthrough happening. I started taking Magnesium 2 weeks ago and at first I didn't see any results. But for the last 3 days, I realized this morning at 05:00 that I had no pain whatsoever. Because I also had no pain in the evenings, I have not been taking my bedtime Gabapentin or the 3 Tylenol. I am taking only a small dose of magnesium 100mg per day. I am going to increase it to 200mg per day and see what happens. I am really thrilled but I do want to be cautious because something else could also be going that I'm not aware of.
Melodie...how much Magnesium are you taking?
Melodie.....I made a mistake about the amount of Magnesium I'm taking. I stated earlier that I was taking 100mg which is WRONG. I started taking one tablet per day which is 250mg but I have been taking 2 tablets now for 3 days or 500mg total. I have had zero flare-ups and no pain whatsoever. I hope you have the relief I'm having Melodie. I just hope it lasts... : -) Let me know how it goes with you taking the Magnesium...
Melodie...I purchased the Magnesium from Wal-Marts retail store. It is made by Spring Valley and is for "bone & muscle health" according to what is written on the bottle. Directions say to take one 250mg tablet per day with food.
http://www.walmart.com/ip/Spring-Valley-Magnesium-Dietary-Supplemen... here is another one
Rondp43 ...What difference between tablets of magnesium and powder of citrate of magnesium ? On "myprotein.com" it is also for "bone and muscle healh" and Directon say to take 2,6g powder per day
. 2,6g citrate de magnesium = 400 mg magnesium
Melodie said:
Rondp43 ...What difference between tablets of magnesium and powder of citrate of magnesium ? On "myprotein.com" it is also for "bone and muscle healh" and Directon say to take 2,6g powder per day
. 2,6g citrate de magnesium = 400 mg magnesium
Melodie...I don't know if there is a difference between Magnesium and Magnesium Citrate or not. I am still taking 500 mg. of Magnesium per day and I have zero flare-ups and no pain. I am no longer taking Gabapentin at bedtime and no Tylenol at all in 24 hours. I am going to stop taking Gabapentin all together and see what happens. I tell you...I don't know how long this is going to be an effective treatment for me but I am absolutely thrilled. This word needs to get out to everyone on this website.
HI Ron and Melodie.
Magnesium citrate is more readily absorbed than Magnesium hydroxide. And I believe the myprotein product has magnesium with protein powder together to make it more absorbable and tolerable without causing so much GI upset.
So many of us have tried magnesium and had to quit because of nasty GI upsets and increases in flaring. I am so glad to hear it works for you.
Cheers,
Dragica