Hi there! I've been searching for answers, and going to tons of different doctors for what has been going on with me for the past month and today I learned of a friend of a friend who has EM. I've been researching it a lot today, and it sounds almost exactly like what's going on with me.
So about a month ago, out of nowhere it seemed, my feet started itching horribly at night. It started on my toes, on my heels, and in my arches. I noticed quickly that they seemed to flare up when they were hot and the only thing that relieved the itch was to soak them in very cold water. The "rash" (I've been calling it) quickly spread over most of the tops of my feet, and completely covering the bottoms. It also has gone up my ankles and backs of my legs.
Over the next few weeks, I was waking up 4 or 5 (or more sometimes) times a night to soak them in cold water because my feet were uncontrollably itchy and red hot. In the mornings especially they'll feel extremely tender and swollen and it'll hurt to walk. During the day I've been having to either soak them, keep them cold, or keep them elevated which will maintain the discomfort for the most part, but as soon as I stop doing any of those things, they'll get red hot and uncomfortable.
The last few days I've noticed that I haven't been nearly as itchy as before (so I've been sleeping better, hallelujah!), but they are still getting just as red hot and swollen.
I've seen my family doctor a few times, a dermatologist, and an allergist. The dermatologist thought it was contact dermatitis from shoes, but I haven't been wearing shoes for the past few weeks (except maybe once a week, and they're shoes I wasn't wearing when this started) and it hasn't helped. I've also been prescribed tons of different antihistimines, topical corticosteroids, and prednisone. None of which seem to make any sort of a difference. I saw an allergist who was pretty puzzled by what's going on, but didn't rule out that it could still be an allergic reaction.
I'm wondering how you/your doctor was able to finally diagnose you correctly? At this point, I don't really think it's an allergic reaction because any allergy medications I take don't help. What type of specialist would be most familiar with EM so that I can consult them about it? I was not too fond of the dermatologist I saw, but I could maybe find a better one if that is who would see this more often.
I'm also wondering if any of you ever had this be accompanied by a rash on first onset? Mine started to appear as a rash, but the rash and the itch is slowly getting better, but the hot and the burning isn't.
Just to summarize my main symptoms:
-Very red and hot
-Tingly (esp in toes)
-Painful to walk (when swollen and hot, usually in morning)
I also had this appear on my hand for about a week, but that went away.
Any thoughts? Does this sound like EM? Any comments would be greatly appreciated!
I've attached pictures for reference.