Thank you all for all that you have shared already.
I want to ask the following novice-like question:
In between flares, assuming that you are not in a constant state of flaring, do you have any periods of feeling "normal" in your feet or hands?
For me this is a typical day- remember I was diagnosed by a doc who deals with eating disorders and thus understood that my chronic low sodium might be the culprit and she saw photos of my feet- all the other specialists over the past year have "poo-poo'd" the low sodium because it isn't dramatically low - the sodium and chloride are each like 5 points off the lowest score on the scale but it is chronic so it has had time to do a lot of damage.
Anyway, between the level 10 pain and redness and swelling of my toes and the soles of my feet, I never feel normal. I have constant neurologic activity. I feel pins and needles, popping and like the whole bottom part of my legs from my knees to my toes are attached to my body with wires- like I am a puppet. I never feel like anything in my lower leg region is just the way a normal person feels. and this has been since August 2012 when my toes went numb- before the pain and burning started in July 2013.
Can you please describe your pain or your symptoms between real flares?