Someone suggested using lukewarm washcloth and then increasing warmth gradually. And after each time of applying washcloth try and let any flares reduce on their own. But this was not someone who had facial em. I thought it was a good suggestion.
Not on any meds. Trying to fix severe digestion issues.
Thanks!
Seeker - Thanks for relaying to me the idea. This sounds very reasonable. I would be game to try it at some point but want to be systematic about trying things one at a time obviously!
Good luck to you, your facial EM, and your digestion issues! xx
Excellent news !!! So happy for you !!!
Joan have you been just soaking or did you turn your heat up in your whole house as well?
No more cooling fans etc. No cooling house. Temp is running around 72-75 degrees. Sleeping with feet under covers. Taking very hot showers. Although I am not totally flare free, the flares subside very quickly and by them selves. I am truly amazed.
I too soak only once a day. I do 110 degree water. Strangely now the heat almost feels comforting. I’m trying to keep my feet covered during the day by socks or slippers.
If you would have told me this was the answer I never would have believed it.
I am vacationing in Washington DC late April. It will be interesting to see how I go with all the talking around.
So when you started the protocol did you then turn up the heat? Or you gradually did as time went on? I have not turned the heat up. I was able to go up to 64 and possibly could do 66. I am trying to see those that did the protocol with success if they treated their whole body by turning up that heat.
I did it gradually. Now I’m up to 75 degrees
At first there were times it was quite difficult and I had to actually just get up and walk around to try to ignore the burning in my feet but it didn’t take long for it to subside and now I can’t believe the results. It’s worth a try, it’s only hot water. And I’m down to only taking 300 mg of Gabapentin. I’ve been able to stop taking all other meds
Great. I am trying to keep track on how many people actually put the heat up in their house vs just soaking so when I speak to the researchers I will say what I know. Also I will be speaking about this at our state awareness day in May.
My doctor said it’s similar to doing biofeedback, where you retrain your brain as to what it thinks hot is. I’ve never taken hot showers like I am now and they don’t even bother me. I think all the cooling I’ve done over the years has trained my feet to think that being cold was the normal. Now I’m hopefully them to think that hot is normal. It’s not just that they don’t flare so much the condition of my skin is so much better. They used to have terrible broken capillaries and little blisters on them and now those of all cleared up and the skin looks pretty much normal . It’s really bizarre but amazing
1/2 cup, 2-3 times per week.
Crps is worse than EM?
You are lucky!! My flares with ulcers are pain 10, the worst pain that i have ever felt and the worst pain that a person can feel, all my skin was terribly damaged as if i have been burnt with fire or acid(my feet) and looked likes if i was burnt in a fire or in an accident. They were all blindfolded. I had it 3 times, the longer is when i was 19/20 years old, i had it all blindfolded, but also with 18/19 because of a bad threatment. It looked like terrible burns. Also in 2020 i had some months like that. It is like being burnt in a fire. Without ulcers the pain is less, when its severe its maybe 7/8, lasta times its maybe 5 or 6, but this 2 weeks my skin was damaged and it got worse. 2 or 3 is very light pain and i had days with light pain, now severe, and even days with almost no pain excepting sometimes. Now i have my hand severely flaring, maybe a 6/7 level pain.
My pain is a 10 in the worst moments(with ulcers) and the “common” one is 5/6 or 7. Cold helps.
Hi,
I’m Michelle from Australia. So some questions. This was your winter when you started? Also. Did you keep the heating on throughout the night. ? . I have EM servere . It’s our summer , and I’m going through so much pain and burning badly. So winter time seems it might be the best time to start ??
Michelle