Bobs protocol

General
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Yeah, most prescription drugs have side effects. Both drugs I take have side effects I don’t like. Mexiletine causes heartburn. I have to take ranitidine (a stomach acid reducer) with it at night. Propranonol causes an abnormal heart rate response to exercise. That means cardiac output doesn’t increase linearly with demand. That can make one feel light headed or even pass out. It artificially reduces my exercise capacity by about 15-20%. I hate that.

The trade off is that the two medications together eliminate about 98% of my erythromelalgia symptoms and allow me to live a normal life. There is a common misconception that all natural things are good for you and all chemicals are bad. But everything is a chemical compound, including our own bodies. Typically the only way to fix abnormal biochemistry is with the introduction of another chemical compound into the system. It’s just a question of finding a compound that works and is not prohibitively disruptive to other biological processes.

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23

Just so happens to today is the day for computer catch up lol. I’m hoping to gain a few degrees and will let you know. I feel as though the soaking will not help much more but maybe trying to acclimate to the temps by suffering a little might ? Time will tell. But for me if I don’t flare in feet my hands get worse. Vice versa. It’s like the heat has to escape either way? It’s crazy. I did try soaking hands but felt it didn’t help.

24

Thank you so much for sending Bob’s Protocol onto me.
I have just watched the video and am going to start the procedure very soon. Does the soaking have to be done just before bedtime or has anyone tried it during the day?
I’ll let you know how I get on in a month or so.

25

Lots of people say at night works best and I have to agree. For whatever reason. I tried to do in the morning but the result is better at night. I do anytime after 5 .

26

Wishing you the best of luck !!! I can’t wait to hear and hope that you have good results.

27

Thanks for your good wishes. I just need to go and buy a hot water thermometer and then I’ll begin!

28

Wow I am hopeful amd will try it, I habe em all over my face, neck , feet and hands, week 5 and sever acute, have tried many medications and someone on Mayo support group said he had been to so many “specialists” and none could help, he said try Bobs Protocal, he said it works, I will start it tomite and watch the you tube

I’m bed bound and only 50, healthy and this hit me May 14th

I’m seeing a functional MD who mentioned desensitization and also NAD, Alpha Lipoic acid, vitamin d and B shots, I’m trying eastern medicine as western and my HMO said “a too rare a disease to r=treat “

I’ll literally withering away here in California and ordered a wheelchair today, had to stop working and am I’m 24/7 pain and agony

Any helpful tips, please p;see share with me

I even considered suicide , bc the pain is too much …I was healthy, athelete and now I flare up typing, talking and nights NO sleeep, on fire all night I used a meat thermometer and my skin was 101…and red all over my back legs face

Saw 3 private pay drs who confirmed EM, we think it’s from poisoning…
All labs, diabetes , etc punch biopsy ruled out any other health conditions , I have had trauma and then the poison (on my skin)l ……scheduled to see a neurologist/anesthesiologist in 2 mos at Stanford…but waiting that long is unbelievable and I worry she will say “take gabpentin and propranolol “ I did and had awful side effects, been to my HMO ER 3 x in 5 weeks bc they RX meds almost killed me

Neuropathy pain is the worst, burning feet syndrome is caused by Erythromelalgia, it started on my face ears, cheek week 1-2, then week 3 migrated to my feet toes hands (palms) and thighs

Can’t walk muscle weakness, feet hands swell, red, itch burn , needles]
No relief, didn’t use ice or cold water seeme to make it calm then wosrse, tried lidocain OTC cream and capscain worked then made symptoms worse

Any suggestions?

Will look up bobs protocol on YouTube

I’ve spent close to $7,000 past 5 weeks trying drs Out of pocket, buying food delivered, portable ac unit, cooling packs, cooling mattress, …it helps then nothing works…

I’m not wealthy and using my savings to try and get sole relief, work as a consultant for myself so can’t talk long on phone or type or I flare up, so had to stop work with my clients…

This is pain measurable and similar to CPRS, 10 on a pain scale literally I feel like I’m and I am burning :fire: up inside (my mouth, inside is hot, my legs, everything, and if I try to walk my feet get purple white and can’t feel t them

Week 5 adn this is agonizing , I can handle pain l people say I look fine, then they sue wna d feel my skin, and face flare u0 and get it

It’s nerves and vascular, and tied to gut health and think the nerves just traumatized and over-reacting l……

Will try anything (safely)

Even 70 is hot for me, 60mis th4 best temp for controling flare ups, so I run AC and a portable unit, we have fires :fire: in California and will be. A long hot summer and I fear evacuations…

So grateful for this forum, feel free to message me , I have done a ton of research and trying anything and everything to help myself

Kindest regards :sunflower::blossom::yellow_heart:
Heidi

29

How were you poisoned? Has the poisoning stopped?
Also, is Kaiser Permanente your HMO? Because Kaiser Permanente successfully treated my EM. I just had to twist a few arms to get them to work with me.

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Hi CarterDK,

Yes it kaiser HMO

I direct messaged you —would be grateful to know did they find your root cause and what protocol did they use to help and treat you and what meds and Drs (derma Neuro etc?)

Thank you SOOO much :yellow_heart::pray:t2::foggy:

Heidi :sunflower: