Hi everyone. I’ve been living with EM symptoms my whole life. I have it in my feet, hands and ears. Within the last year or so I’ve been noticing my legs are turning purple when I’m standing for more than a few minutes. This doesn’t really bother me but the last few months my legs have been getting intensely hot when I lay down in bed. It keeps me up most of the night. Sometimes my feet burn as well, sometimes they don’t. Wondering if anyone else has similar symptoms and if this is connected to my EM? I’ve been seeing a dermatologist and a rheumatologist and neither have been able to give me any answers.
Yes burning legs, that is my main problem and the only help was a bed frame to keep the covers off. I cannot wear long trousers either, they cause burning legs too. Keeping at a constant temperature say 23 degrees makes it bearable. Hope this helps.