Hi there! I am new and I appreciate the warm welcome I received when I joined this site. I have had Raynaud's since I was about 8 or 9 (so roughly 15 years). My Raynaud's has actually gotten BETTER over time, particularly after I went on oral birth control (which I was on for almost two years, from age 19-20). However, it was during that time period that I felt hot almost 24/7 and I started experiencing more of the "inverse of Raynaud's" which I had always had to some degree but seemed to get worse after starting the BC. Of course I found out recently that inverse is probably EM.
So far, I do not experience the pain that everyone talks about. My hands/feet get very uncomfortable and red--they throb and feel "heavy" but they do not hurt. I am wondering if this disease seems to get worse as it goes along? I can kind of remember having EM like symptoms over the past 15 years, but it seems to have gotten worse for me as I get older, particularly with hormonal changes.I am wondering if it will continue to progress? Or maybe the EM will get better but the Raynaud's will get worse again (I still do experience Raynaud's fairly frequently, but not nearly to the extent of when I was a child). Any insight into this would be helpful!
Thank you, and good luck to all of you.