I've been suspecting that I have EM for a few years now, but keep doubting it because my symptoms seem so mild compared to most that I read. The past year or so though I've been seeing a bit of worsening in my symptoms and am beginning to worry that my hunch may be correct. I'd just like opinions as to whether this seems like EM, or if this was how it progressed for anyone else, as the few doctors I've seen have all told me they just don't know what it is:
-Since my teens, my feet have always felt incredibly hot in the summer, and when wearing shoes, I'd get what I used to think were "heat sores" - tiny red patches that burned badly.
-Those initial symptoms have followed me through the years, and always seemed aggravated by heat or longer periods standing.
-Oddly enough, most other times my feet and hands tend to run very cold and clammy. I also have a very small temp range that I'm comfortable in, and usually find myself very cold or overheated.
-For the past 10 years or so (I'm 32 now), when I have what I think of as "flare ups", the bottom/sides and heels of my feet will turn very bright red, and they have a burning/tingling/itching, and I usually get a few slightly darker areas with a deep intense bruising feeling. Flare ups now seem aggravated by heat, standing, or sometimes simply when I go to bed, and can last for hours to days. They don't appear to swell, they only turn bright red - never purple, and I would classify them as painful but still tolerable (I can still work, go out, etc - they will just hurt/burn the entire time). I can still go about my life, and would classify them as ranging from an annoyance (with the strange deep itching almost daily), to a fairly intense pain if I make the mistake of staying on my feet when they flare instead of giving them a good rest.
***most concerning to me*** is that today I looked down and the palm of one hand was almost comically bright pink/red, similar to my feet are when they flare, however, it did not burn or feel hot. It looked like I had placed it on a red shirt with dye that had bled. This has *never* to my knowledge happened before. I could not think of any explanation for it, one hand just suddenly looked bright red on the palm like it had an allergic reaction, and after a few hours it simply went away.
My heart sank a little when I saw it, since I know many of you mention that your EM affects both your hands and feet and that the disease progresses over time. I'm hoping people here can chime in and let me know if this sounds like EM to them, even though my symptoms are much more mild than most. If so, are there any home remedies commonly recommended for this milder stage of EM? I see many talk about steroids and more serious drugs, and I personally would like to avoid those unless this progresses to not being tolerable. I would, however, like to try as many known remedies as I can in case there are some easier solutions. So far, I've only had good luck with bare feet/flip flops, trying to stay cooler even though I feel chilled when I do, elevation and wearing wet socks.
Any advice/input is appreciated. If this sounds like another issue instead, please let me know.