How Frequent Are Your EM Flares?

I have just been officailly diagnosed with EM... my "flares ups" just happen.. 1st is legs just above the knees then travels down legs and arms. I get longer sessions on face. these can happen any time of day or night. I could be sat down feet up, walking, moving quickly staying still and the best one I think so far is driving... I always have a flare up when I am driving to work in the mornings. these can last anywhere between 10 mins to several hours.

I am also a Raynaurd's sufferer which doesnt help because i have both flare up at the same time which I have been told is unusual.

There is no rhyme nor reason for mine I have no idea what triggers it if any

When my feet were so bad, i used cold water but not directly, i put my feet in plastic bags and then in water to not damage the skin. The water sometimes had ice, so it anestesiated my feet and the stopped hurting

It depends of the day and of the temperatura. If i am at home and its fresh, i flare after sleepping but then some days i have no flares more(afcter cooling my feet) and after eating dinner too(at night). Some days i can have a little flares but others(specially in summer) i can be flaring terribly almost everyday. When i go outside and come back after walking, i usually flare. If i keep my feet and hands cold i dont flare, but if i am hot, i flare.