I need help please!

Thank you so much for sharing your pictures and reaching out! I have to say how very SORRY I am for you that you are going through this. I wouldn’t want anyone to go through this!! My heart goes out to you looking at your feet. Some of the picture look fimilar, while others don’t look the same. Gratefully I haven’t ever had symptoms or pots syndrome. I’ve been diagnosed by 4 doctors with CRPS, when 2 doctors say it’s idopathic EM. I don’t have flares from heat, showers, hot baths, or being out in warm weather. I wake up with burning feet. When I get up and start walking my shins will start stabbing and burning. The pain is constant. Even when I don’t have erythema, it still is painful. Do any of these symptoms sound like yours? Thank you again for your help and time! Take extra good care of yourself.

Hello, I’m sorry to hear of your experience. Keep up your hope and keep educating yourself on this site.
I’m happy to say I’m recently on the other side of my EM :tada:
I was diagnosed about 2 years ago with EM following a foot injury and too many steroid injections. I had my EM diagnosis confirmed by 3 different doctors (podiatrist, rheumatologist, functional medicine). None of the conventional doctors offered me much but my functional medicine doctor did give me some good tools.

One thing I will say is be careful about ice baths as it could over stimulate your nerves from going from hot to cold. Try room temp water to cool your feet.

Its a journey…I tried many different therapies, medications over the last few years and just seemed to stay the same. I’m not sure exactly what caused my turn around but I found so much help from this site I’m compelled to share my success. Of course everyone is different but I’m so excited that I can live more normally, I just had to share.
I’d be interested to hear from Joe Schmo about what he thinks made the difference in turning this around.

Here is what worked for me…
Room temp foot soaks with epsom salt when hot feet.
Cold therapy socks (available on Amazon) - I kept mine in the freezer and would wear for 10-15 mins to cool my feet. It’s cleaner than a foot soak.
I tried many creams including the capsasain, lidocaine, aspirin, ketamine / amytriptaline combo and none worked.
Anti inflammatory eating (limited sugar, no additives, preservatives, etc. whole 30 diet)
Exercise on stationary bike (gets blood flow going throughout body).
Stopped Celebrex (weird…I thought it being an anti inflammatory was helping me, and maybe it was a coincidence, but I started healing after stopping it.
Removed eggs from diet - healing started to happen after d/c eggs x 2 months - coincidence? Maybe but I don’t miss them and it’s not a risk I care to allow back into my diet.
Tumeric supreme pain 2 pills twice a day (I’m not going to name a brand as I don’t want to promote anything specific) be sure tumeric has black pepper in it as that is the beat effectiveness.
Fish oil with CQ10
Alpha Lipoic Acid with biotin (also helps with neuropathic pain)
Low dose naltrexone 4.5mg at night.
Also, my thyroid was low so we increased my thyroid med around the time I started improving.
And prayers! Ask others to pray for you too. God hears all of our prayers :sparkles::pray::sparkles::pray:
I hope you and everyone in this site find the solution that helps you.
God bless you all and thank you to all that post here. You were my sanity, support and motivation!

Looks like EM to me. I have constant pain without being red. Once mine get aggravated, they do not have to be red to hurt.

EM can be acute or chronic. I have chronic like it is constant. My feet can burn without being red but they were red which is what starts the pain, but my redness is mostly on the soles of my feet like yours. Elevating my feet eliminates the redness like yours and I also have it in my legs if my legs are dependent and that is one of the criteria for diagnosis, dependency increases blood flow which creates heat, which creates burning and nerve irritation.

@Mbaugh-how are things going? Have you gotten any answers? Any relief? Did you try the infusion, and if so, what kind d of results did you experience? Hope you’re better!!