Hi everyone. First, I hope today brings you much relief and happiness. I hope tomorrow you find your answers and help you much need.
I’ve been learning day to day how to make things easier as my EM is really bad right now. I can’t even go into the bathroom from the bedroom without things spiraling out of control. I can’t sit outside for a minute. I am a prison in my home and more so in one room. Go shopping? Great ac in car helps. But trying to get from the car to the store if not up front parking very hard. I wonder if they would give a temp handicap parking card for your car during the hot summer months.
I learned never leave the house without cool packs. The ac in my husbands truck died while we were away. Never again. Now I found a fashionable little ice bag that looks like a lunch bag but it freezes. So I freeze that put in three cool gel packs and in my car I have a cooler. That goes in there. Always. Never leave without it. Just like a diabetic doesn’t leave without their meds.
I picked up from Home Depot what’s called Ryobi portable fan battery operated that you charge. It is the best fan for this purpose as I have bought others. It has low and high speed and it the speeds work very well. I have two batteries. They each run on low about 3 1/2 hours and on high about 4 - 4 1/2 hours. So with two batteries it can bring me through the night if the power goes out. But what I use this for is outside. If I can find a day that it’s not that bad I can sit in the shade and put that fan on. It works.
I have no outside time like you all I’m sure. So this allows for some outside time. Or if you are going to a cookout or something and you don’t want to ask someone for a fan, etc. you have yours.
I have a nice back pack I bought. I put the fan and two batteries and charger and can fit much more if needed. That goes with me when I think I may need to use it.
My next thing I am working on is making a hand help cool pack. At night my hands burn. I curl my hands when I sleep. So I feel if I had a little ball that could freeze that would be perfect to hold in your hands at night while trying to sleep rather than using a big cool pack.
I found online you can use rice and freeze that. I am going to experiment and if I find something that is useful, I will put it on here to maybe help someone else.
Wishing you all well.