Living with EM for 5 years

Hi everyone! Thank you for adding me. I have been suffering from EM for about 5 years but diagnosed about 1 year ago. I have Takayasus arteritis and my vascular medicine doc diagnosed me with EM based on photos and symptoms. They say it’s probably connected to Takayasus.
I have had a hard time sleeping due to red hot itchy hands and feet. I am on a nerve calming medication but still have problems.
Thank you again!

I don’t know if it’s relevant to your type of vasculitis, but I have rheumatoid vasculitis. My rheumatologist has done some infusions of Rituximab, which in the UK was only approved for vasculitis last year, initially a cancer drug. It’s made a huge difference and the only thing that ever has.

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