I am new on the Chat Line and still learning my way around. I have been told I have EM but no one knows how to treat it. Told I should go to Mayo. I am so very anxious to hear of your visit and if it helped.
I went to Mayo last month. If you are a member of EM Medicine/Treatments, Information and Support Group, on Facebook, I shared my experience and treatment plan in a lengthy post, if you anyone is interested in reading.
Can you please tell me the doctor you saw in Toronto. I was recently diagnosed through Womenâs College hospital⌠and itâs been challenging. Any information you have I would appreciate. Thank you.
Dr. Alhusayen at Sunnybrook Dermatology Clinic. That was 8 years ago, but he should still be there. Did the Dr at Womenâs College not have a referral for you, esp since they diagnosed you??
When I was at their Bone Density Clinic a few years ago, I told the Dr about Erythromelalgia and she was very interested, as she had never heard of it. Iâm so glad theyâve heard of it now!
Iâm happy to answer any questions you might have if you want to write me directly at lynnsl@rogers.com