Welcome
Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use New User Help Are you a new user? Don’t worry we will guide you through the following videos. FAQ FAQ about the Erythromelalgia Community New Member Introductions New members, start your experience here. Introduce yourself and share your story how you are affected with Erythromelalgia. Welcome!
| Topic | Replies | Views | Activity | |
|---|---|---|---|---|
|
Site Etiquette for LivingWithErythromelalgia
This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, and mutual support. Members come from many backgrounds. Some have a… |
|
1 | 1835 | July 3, 2019 |
|
Welcome To Our New Discourse Site
Were you a member of our old Living With Erythromelalgia - Online Support Group site? Simply LOG IN with your email and click on "Forgot password". We will send you a link to claim your old profile. First time visitor?… |
|
6 | 2403 | September 22, 2016 |
| About the Welcome category |
|
0 | 1710 | June 1, 2016 |
| Advice for Treatement in NSW |
|
3 | 52 | December 10, 2025 |
| Hello from Victoria, Australia! |
|
4 | 799 | September 9, 2025 |
| Anyone in Australia with this disease |
|
0 | 36 | September 9, 2025 |
| Looking for support and resources! |
|
13 | 379 | January 19, 2025 |
| Hi, new here :) |
|
3 | 240 | August 16, 2024 |
| Introduction and location |
|
11 | 213 | May 28, 2024 |
| New member - hi 👋 |
|
6 | 475 | March 7, 2024 |
| Welcome Heidi! |
|
0 | 323 | June 21, 2023 |
| New User Guide |
|
2 | 1004 | June 15, 2023 |
| EM triggered by bright light? |
|
5 | 1201 | March 22, 2023 |
| Varying Degrees? |
|
45 | 3024 | February 25, 2023 |
| Introduction new member with EM since 2005 age 69yrs.lady.Also have Raynaurds |
|
8 | 430 | January 17, 2023 |
| Intrathecal Pump. IVIG. or Plasmapheresis |
|
2 | 777 | January 9, 2023 |
| New Member Inrtoduction |
|
15 | 396 | July 1, 2022 |
| Newly diagnosed with EM with other issues |
|
18 | 776 | February 24, 2022 |
| Burning, red, painful feet |
|
3 | 466 | February 14, 2022 |
| New symptoms |
|
12 | 607 | January 16, 2022 |
| A warm welcome to our new members |
|
0 | 307 | November 22, 2021 |
| Privacy Policy |
|
0 | 517 | May 30, 2016 |
| Terms of Service |
|
0 | 515 | May 30, 2016 |
| Community Guidelines |
|
0 | 218 | November 11, 2021 |
| How is Ben’s Friends Different from Social Media and Other Support Sites? |
|
0 | 228 | November 11, 2021 |
| Support group for younger EM patients? |
|
5 | 531 | April 18, 2021 |
| Is your EM part of another condition |
|
18 | 2346 | March 6, 2021 |
| Hi Everyone - I'm New |
|
8 | 1460 | January 17, 2021 |
| Mayo clinic appointment help |
|
23 | 2857 | November 11, 2020 |
| Andy's story |
|
2 | 555 | October 15, 2020 |