So far this month we’ve had a handful of new members join this supportive community! If you click on their @tag or on their avatar you can read a bit of what they’ve included in their profiles.
Didi (@Unfinished) has been aware of her symptoms for 12 years now and is very concerned about how they may progress. Many members here know what that is like. We are so glad you’re here.
@phoebe was formally diagnosed with Erythromelalgia around 6 months ago and is currently in the process of applying to medical school. How wonderful! We are all cheering you on.
@karenp is a proud mom and wife who has lived with Erythromelalgia for around 20 years now. From your profile it sounds like you’ve tried lots of different treatments. What has that experience been like for you?
Sarolta, whose screen name is @rasarolta, went through 2 years of symptom flare-ups and misdiagnoses before being diagnosed with Erythromelalgia. That sounds incredibly frustrating. Please know that you are not alone.
We’re all so glad you’re here. I encourage you to start you own discussions and share your stories by clicking the + New Topic tab. Feel free to also look through past conversations by clicking on the search icon in the upper right corner of your screen. Don’t hesitate to reach out with any questions you may have - I’m more than happy to help!
You’re in our thoughts,
Sara