Hi Amy (@AmyJ)!
Welcome to Living with Erythromelalgia, we’re so happy you’ve connected with our community 
I’ve just seen your story and it must have been really frustrating to have those symptoms for so long but not know the case… I’m glad you’ve finally been diagnosed, and at the very least, hopefully it will provide some answers To help you get used to the site, I recommend the “Guide” tab for a quick how-to, as well as the search icon to help you locate any specific topics you might be interested. And as always, feel free to start your own discussion and share your story!
Hope this helps and please let us know if you have any questions,
-Megan