Hello,
I hail from New Zealand and am slowly reading through the posts in this forum. I am not sure where to start with my story! Prior to Covid-lockdowns, I suffered with an ingrown toenail which meant that I usually only wore jandels. I think my feet got warm in those days. When I finally got help from a podiatrist, I got a severe rash on my feet and legs (and a bit on my hands). I was also diagnosed with ME/CFS and had to resign from my job the previous year. Now I have a big red patch on my left foot that a rheumatologist said wasn’t like that when I went to him earlier. It has been about 6 years that I have really struggled with severe facial flushing. Every place I went to seemed very hot to me and my face would go bright red. My GP ran out of ideas to help so she referred me back to the rheumatologist who suggested Erythromelalgia as my feet (alternates between burning and stone cold - sometimes both but not always), right hand (which is nearly always looking red and puffy with cracked/dry skin), and my face/ears. I have tried several different things which haven’t worked. When it gets bad, I get really emotional and wonder what the point of life is as I can’t go out anywhere, have to stay cold (in cold environment), or do much, particularly outside in the sun. I wondered what others would suggest?
Louise