hello :) I have recently been added to this page. Thank you.
I am here to mainly read and learn more about Erythromelalgia and try to figure out if this is what I have. Initially I had nodules on my knuckles that hurt when bumped. It got very annoying and they were turning red so i saw a dr. Xrays showed no RA. C Reactive Protien is 3.3 which from what I read is high. The very day i had my xrays, i had a new symptom pop up. My hands started turning red from the knuckle down and felt very hot. I would not say painful but very very annoying. I then noticed tingling in both hands although it's more prevalent in my right. I also have a little tingling in my arm. All my research on the redness in my hands brought me to Erythromelalgia but minus the burning pain. I am only a few months into this and trying to figure out what is wrong with me and I'm already beyond frustrated.
I've attached a pic of my right hand vs left hand. although the redness gets much worse.
Nothing wrong with your post jmama.
The trouble with EM is that it can have one of so many different causes and manifests in many different ways.
Did the nodules appear out of nowhere or have they been slow growing? I have nodules on every joint of my fingers but each one took months to grow and it is diagnosed as a form of osteoarthritis.
I’m mo doctor but you could be in the early stages of EM but don’t let that panic you as some people never develop severe symptoms and not everyone has the burning pain.
The nodules appeared gradually. One on my middle finger and then it spread to the third finger. A few weeks later one popped up on my other hand middle finger.
While I am thankful not to have the burning pain I am frustrated to not know what is wrong. Paranoid to workout because I don't know if it could possibly be circulation issues. When I compare pictures online of hands of those with Erythomelalgia, they look like mine for the most part. It is the closest thing I've found.
Hi, jmama39, and welcome! Have you had blood tests done for RA? If the rheumatoid factor is present, then it could be that. I have RA, psoriatic arthritis, fibromyalgia, and peripheral neuropathy, and they all can cause pain, swelling, redness, and heat in your hands (and feet, and everywhere). I have not been diagnosed with EM, but the symptoms I have in my feet seem to be very indicative of it, and I believe I have it. My rheumatologist thinks I may have CRPS (Chronic Regional Pain Syndrome), so we are currently exploring that. At any rate, I am SOSOSO glad you are not having the burning pain, and I hope it stays that way, and I hope you find an answer and a treatment very soon!
