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41


CarterDK
Leader

    June 20

One of the doctors I walked out on also told me no one would be able to help. But someone did help me, ironically, 2 floors above him in the same medical center. LOL

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In Reply To


joeshmoe

    June 19

@CarterDK I dropped the F bomb at a neurologist who told me that there was nothing anyone could do for my “made up” symptoms and that I would have to just get used to it. One month later I started making headway with the cyproheptadine and then the mexiletine another month later. @Teresa111 My best a…

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42

Yes I could not agree more - when all my joints and labs indicated RA my doctor sent me to a specialist who in a word was an ass - I seen him several times and he told me he didn’t believe I had RA or when the neurologist diagnosed me - told he didn’t believe I had erythromelagia - however Wanted to medicate me - no thank you I said and decided I was done with his mental games. Because if I was going to get depressed it would because people like him.

43

Teresa -

I appreciate your candid intro, seems like you are a strong woman, working in spite of EM and also trying to be positive, no less. I hope your PC can give you some direction, so helpful to have a good point person who you trust in that role.
… I too can sympathize with “being passed around like a hot potato” - an apt analogy! - I almost feel like I have a version of PTSD from dealing with so many docs - the overly confident doc who strung me along + didn’t recognize his limitations, the doc who could have referred me easily to pain management but didn’t, etc. And from watching my family’s hopes rise and fall throughout.

I am fortunate to see really, really good docs now though. I hope you will get to that point too. Keep us posted and thx for sharing your positive spirit

44

Oh you are far too kind :hugs:. I really do try to keep positive, but I have my moments. As far as work goes - for as much as it pains me to be at work - it scares me not to have the motivation to get out of bed! I am so glad that you have good doctors now - PTSD is the correct term to describe the end result from being passed around to the many many many doctors who make you question your own sanity - truly a version of torture in and of itself.