I saw an orthopedic surgeon this week and he consulted with 2 other doctors about my hands. He doesn’t think I have EM and said it’s consistent with either Raynauds or Autonomic dysreflexia. I am now confused as to why the Mayo Clinic and my Rheumatologist would say I have EM. I don’t have constant chronic pain and my skin reacts equally to hot/cold temperatures. I will be doing a calcium channel blocker for 2 weeks before meeting with my doctor who says my response to the calcium blocker could give insight into what is going on. The surgeon did say I should see a vascular doctor. Is anyone familiar with any of these vascular disorders? I included 2 pictures
Your left hand doesn’t look as red as mine goes. Do they ever turn blue? If they do it does sound more like Raynauds than EM. Plus your lack of constant pain and reacting to the cold as well. If you press your skin when your hand is red does it go white and then when you release it does it come back to red quickly? If it takes time to come back to red it seems as though you don’t have a good blood supply, which is why they may be thinking of vascular reasons.
When I press on my hand I see like a white circle and it slowly goes back to red. The finger tips are blueish/purple in cold settings sometimes the entire hand to but usually just when around cold areas
Certainly sounds like you have poor circulation as the red colour should come back very quickly it’s the first quick test doctors normally do to check it.
@josh12 I have had mainly hand issues for over 3 years (sometimes feet to) & was diagnosed with raynauds early in finding what was wrong with them, although my hands never go blue. After numerous more tests & seeing different consultants i was no further forward. I found out about EM doing my own research. I then saw a vascular consultant who said it could be both raynauds & EM & that’s why any slight change in temperature can cause me symptoms.