Try a dermatologist. They are taught about Em in school. Bring photos of a flare.
Thatās what my mom doesā¦ Biofreeze, elevation and cool waterā¦ No other medication has helped yet
it was actually a pain clinic doctor who diagnosed meā¦what works for me though not perfect is Aspirin and Lamotrogeneā¦lamotrogene is an anti seizure medication and its an āoff label useā to treat EM. The aspirin really helps though as well. I had some medical tests the other day and had to stop the aspirin for 2 days and I am still getting back on track with it 2 days later. Aspirin is an anti inflammatory and a blood thinner so it seems to help on both counts.
Although no medications helped me, a low oxalate diet has actually helped me dramatically. It involves avoiding foods that are high in Oxalates. But if you try it, start very gradually. The yahoo group called āTry Low Oxalatesā has great information.
I can stand and walk and wear shoes for hours now. My feet can even feel cold now. There isnāt a blowtorch to my feet every night. It went from horrible burn pain to a mild first degree burn, or even no burn. And I have energy like I had forgotten existed.
Itās a difficult transition, I am still adjusting. Swinging back and forth between amazing and sick, trying to detox slowly from this stuff in fruits, vegetables, and nuts that I didnāt even know existed.
Itās not a pill, but ultimately so much better than any pill I ever tried. I donāt know if this diet would help anyone else, but I wonder how many others are burning alive day after day and can hardly move because they eat spinach and almonds?
Good luck, may everyone find something that helps them. A little or a lot.
Very interesting, I get really bad kidney stones. I get two different types one from uric acid and the other from calcium oxalate. I used to have the list of what to avoid and I followed it for a few years and took allopurinol for the uric acid. I have stones in my kidneys all the time and have had 16 surgeries for my stones. But I have so much scar tissue on my ureters that I donāt have as bad of pain when I pass a stone. But if avoiding calcium oxalate helps EM then I should get back to that diet. I am on coumadin because I have had quite a few episodes of DVT and PEās so I donāt eat much dark green veggies because of vitamin k messes with my coumadin and screws up my INR.
What side effects (if any) have you had with the Mexiletine?
The only side effect Iāve had is heartburn when taking the pill on an empty (or near empty) stomach. Thus, I take it with a meal. Basically, I must āburyā the pill; begin a meal, take the pill halfway, then finish the meal. I also take it with milk for added protection.