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Tell us all about your Erythromelalgia symptoms. What works and what doesn’t?

Hi, was just tentatively diagnosed by a dermatologist. I also have hypogammaglobulinemia. My question is: even when I’m not having a flare, my toe pads have tingling and burning. There also have pea-sized dark red spots on the tips of my toes. Is this normal with EM? During the night is mostly my left heel that :fire: burns. It hurts so bad where it touches the mattress.