About the Symptoms and Treatments category

Tell us all about your Erythromelalgia symptoms. What works and what doesn’t?

Hi, was just tentatively diagnosed by a dermatologist. I also have hypogammaglobulinemia. My question is: even when I’m not having a flare, my toe pads have tingling and burning. There also have pea-sized dark red spots on the tips of my toes. Is this normal with EM? During the night is mostly my left heel that :fire: burns. It hurts so bad where it touches the mattress.

Hi, I have extremely bad Erythromelalgia. It’s warming up here in Australia now, and of course the heat puts me in excruciating pain. I’m just wondering how you all deal with the heat when your feet are burning. :fire: Thank you kindly. Michelle