Hi, was just tentatively diagnosed by a dermatologist. I also have hypogammaglobulinemia. My question is: even when I’m not having a flare, my toe pads have tingling and burning. There also have pea-sized dark red spots on the tips of my toes. Is this normal with EM? During the night it is mostly my left heel that 
burns. It hurts so bad where it touches the mattress.
https://www.flickr.com/photos/192323604@N06/50995349906/in/dateposted-ff/
This is during a flare, I don’t have a good pic of the spots on toes as they are on the underside/sides of toes
You can upload photos here directly within your post. (Tap the photo up icon.) I wasn’t able to view your photo because I don’t have a Flickr account.
Sounds like neuropathy and the spots sound like chilblains
Hello Teke
Appears it could be chilblains. Do the spots itch and or burn? Corticosteroid cream helps mine with the itching.
Yes they alternately itch and burn. Is that cream available over the counter or do I need a prescription?
Available over the counter. Many anti itch creams contain the 1% Corticosteroid.