I was diagnosed with EM a month ago. I am a young active 24 year old living in sunny southern California. If you have EM, you probably just read that and said "poor thing" or "bless her heart" (if you are from the south)- because you know that the sun, heat, and exercise are not EM's best friend. I am slowly learning this as well, and it is almost devastating. Although I do tend to worry about how I will manage the pain each day, I worry more about how this will affect my friends, family, and relationships. I have only been dealing with this for a month, and many of you have been strong and worked through this diagnosis for years. I really look forward to your comments, coping skills, and learning from you all.
I know EM is different for everyone, and for me, it has really affected my social and occupational life just in the first month. I feel bad telling my friends I can't go to dinner because I don't know how hot the restaurant will be, and how it will affect my feet. Or, I can't go to the gym because of my feet. OR having to leave early from work because the pain is so bad I can't concentrate. It's been a month and I am so tired of using my "FEET/EM" as an excuse.
I guess I want to know how others have coped with the diagnosis, and how you have adjusted/made accommodations to continue the things you love/loved doing before EM?
Any feedback and suggestions are greatly appreciated. I have started a positive note book and my quote for the day is: You never know how strong you are until strong is the only choice your have left- Bob Marley
Thank you all! I am a new member to the group and this is my first post :)9-strong2.jpg (62.8 KB)