I recently went to chiropractor who has an alternative treatment for neuropathy sufferers. It has given much improvement to many who has diabetic neuropathy or has it due to chemotherapy treatment.
I decided to try it to see if it could help my em. I have had em since 2015 and suffered much until I found combination of cyproheptadine,aspirin and magnesium. This regimen has given me great relief so that I can now go for walks even in summer and wear enclosed shoes. I still get hot and swollen toes but they cool down naturally after I get back to a cool temperature. I rarely get flairs. Still I think that I want to give this treatment a try to see if the em could go into remission.
The treatment involves low light therapy, massage vibration, and electro stimulation. After trying this for 3 months I can’t determine if there is improvement and possibly negative effects because recently I have had some flares. Since em and neuropathy have some similarities I was hopeful. Does anyone have any thoughts on this or have you tried anything similar. I am one of the em sufferers whose cause is not determined but it is not hereditary nor do I have an underlying disease as contributor. I’m not sure whether to continue the treatment. I would appreciate your feedback.
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what is the treatment called?
also, would you feel comfortable sharing more specifics about your oral treatments (i assume the cyproheptadine, aspirin, and magnesium are all oral)? I’m mostly curious how much aspirin you are taking, because I also take it and wonder if it’s a very high dosage (I’m new to this site, so I am nervous to share my specifics, but I will try. I take 325mg 3 times every day.) I also take magnesium, but for more general purposes of relaxing, reducing anxiety, and helping sleep. I take magnesium glycinate. Not exactly sure of the dosage off the top of my head, but can find out for next time. Have not tried any prescription meds for Erythromelagia yet, but am looking into it.