I know when people get better they leave this group. However I am only looking for positive stories.
How many of you have seen an improvement In your EM over the years? Or even a remission?
Just this please. I know some of you it has gotten worse but I just would like to maybe the very few who have gotten better. Thanks 
I have finally found great relief. I recently added to the cyproheptadine aspirin and magnesium. I take 650 mgs aspirin and magnesium plus protein (containing magnesium oxide & amino acid chelate). It seems to absorb very well. I can now wear tennis shoes with socks and walk for 30 minutes with minimal discomfort. I let my feet cool naturally which sometimes takes 20-30 minutes but the burning is not unbearable. I’ve also mostly stopped flaring at night. I hope this is helpful to many of you. Blessings to all.
wow, that’s great. Did you get worse before better when you added the magnesium?
No I didn’t. But I tried alpha lipoic acid and it made me worse.
Magnesium and alpha lipoic acid are both calcium channel blockers so that is strange that one helps and the other makes you worse.
I know that is odd But each tome I took it flaring was much worse the following day. I thought how can it even effect me that quickly but it did.
Serotonin based EM seems to respond within hours to treatments that either worsen or benefit it. I don’t know about you but I noticed a difference within one dose of taking my cyproheptadine last September. Another supplement you might want to look into is feverfew. I find it helps me much more than cyproheptadine.
What about the Bob Protocol? Anyone tried it out?
I think you’ve brought Bob’s protocol up a few times - have you tried it yourself? best.
I don’t think mine is a positive story but I thought I will share, it’s somewhat of a remission or rare flare? For a couple years my toes itched like crazy a few times but stopped after a couple days so I never really paid attention. Then 2 years ago I moved to the US (San Diego to be specific) which has the best weather around here and I had a crazy flare for weeks around winter time, it was so itchy and painful, swollen like bee stung, tender, sensitive… it was so bad. That’s when I found this group.
Anyway mine went away until a few days ago (just moved to Iowa). I’m still trying to figure out if I have chilblains or EM, or both…
I hope we all find relief soon.