Update - the nephrologist does not think I have amyloidosis, at least of the kidneys. It is a big relief. He will keep monitoring me for the next several years, however.
They put me on a low oxalate and a low protein diet. I wish they had warned me to do the low oxalate thing gradually, but that’s a whole different support group.
And the low oxalate is really affecting my EM. Once I am through the uncomfortable process of adjusting to it, I will write more. I have hope that it might get a lot better with that diet. But I will wait and see how it affects me. If it does help, I will write all about it on a new thread.
And for now, the hunt for answers continues…